fighting Ankylosing Spondylitis or AS

This is a story about a turning point in my battle against the pain. I thought it might help someone so I posted it! :)

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Education

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• secondASvideo

[jennadrums]

You would think doctors would at least be aware about this. I diagnosed MYSELF with this 4 years ago with Dr.Google. Yet, it took 2 worthless hip surgeries and sooo many specialists and doctors to finally get the diagnosis at 25 years old when I had this since I was 19.

[ASsufferer]

@jennadrums Yes I had the same reaction at 40 years of age when I finally got the DX. I had been living with it for 25 years. I am just thankful that I didn't get caught up in the revolving doors of doctors and surgeries. I was mad at first but then I read how incredibly common it is to be overlooked. Its funny, I had a friend and his mother who had this and when my Doc said, lets test you for AS I said, Oh I know I dont have that, they would have caught it by now....I was wrong! :) Thanks!

[TheRickyNLisa]

Thank-you so much for sharing. I never heard of AS until just recently. My 10 year old daughter was just diagnosed with this. Her symptoms started when she was 8. She is a very hard worker and very smart, I want her to be a fighter and not let this illness stop her from reaching her dreams. What can we for her today to make her future as good as it can be? Would you have done anything different? Thanks again.

[ASsufferer]

@TheRickyNLisa If you want her to be a fighter, let her learn Martial Arts. I started with it when I was 14 and shortly thereafter was when my pain began. I thought it was something I did or the lack of exercise.....whatever. The philosophies I got to learn and study because of my interest in those ast was what helped me cope with this all the time. watching the movie Rocky a lot helps too! God bless you and your kids!

[TheRickyNLisa]

Thank-you so much for sharing. I never heard of AS until just recently. My 10 year old daughter was just diagnosed with this. Her symptoms started when she was 8. She is a very hard worker and very smart, I want her to be a fighter and not let this illness stop her from reaching her dreams. What can we for her today to make her future as good as it can be? Would you have done anything different? Thanks again.

[ASsufferer]

@TheRickyNLisa I think it was better for me that I did not know until just a few years ago. I think it would have really messed me up. I have seen it with a close friend. I really think that have the chance to put your ideas in her head that it is not the end of it all. it will suck at times and there will be times when she will feel great. At 10, I cant think of how a little brain would handle it but I would think she will not be able to understand what it means. Keep her fighting spirit up!

[kiranadhikari8]

guys try JIM HUMBLE'S MMS.. GOOGLE IT...DO YOUR RESEARCH .. I WAS ALSO DIAGNOSED WITH AS 6 YEARS BACK.. SOMEHOW I CAME ACCROSS THIS BLOG ABOUT A GUY WHO CLAIMED TO HAVE CURED AS WITH JIM HUMBLE'S MMS.. I'M USING IT FOR THE LAST TWO WEEKS AND AM ALREADY WITNESSING A MAJOR RELIEF FROM THE PAIN..

[ajonz9213]

i would like to invite you to check out a new site that i set up to network people with AS and to share wisdom, treatments and encouragement!

Please come check out the website! im hoping to make a large network and bring us together to understand this disease!

check out my profile for a link to the site

as help within .webs .com

Andrew J

please do not confuse with spam! :/

[ajonz9213]

@TheRickyNLisa I agree, the key thing is to keep her moving, help her along and dont stop doing activities unless she says she cannot do it. this can be good for you as well. Make it a point each day to do (with her) stretching exercises, exercise with her, play and have her live, make it fun! keep track of her and if she needs to talk about being different and cannot do things that other kids cant, be there for her. I would suggest a physical therapist consultation to know how to help it along.

[musiclover3928]

Forgot to make an interesting comment. Before this decease started, i also had a HUGE back spasm one morning. I woke up with this horrible pain and my lower back was very stiffed. I actually called out of work two days in a row. My life has been misery ever since that day :(

[musiclover3928]

Keep your chin up grasshopper, you're not alone. God is with us all :)

[maradoria]

i don't have the gene, and i have AS, sometimes is not so easy to find out...

[brmccu01]

@goofygirly2010 I had to diagnose myself as well :/

[trebor8nat]

i know the pain.i suffered it too

[goofygirly2010]

Thank God for my Rheumatologist, it took me several years, over a decade and hundreds of tests, scans, xrays and mri's for someone to finally run the hlb-27 disease factor test!!! I know more about A.S. than several Dr's, it's ridiculous! I have had to use the Internet and the library to figure out what is wrong with me, myself, not the Dr's!!! Don't give up until you get the answer and find a Dr. that treats you as an individual, not a statistic!!!