The Battle Against FOP - 1 of 5
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In view of the risk of misdiagnosis is it standard procedure now all over the world that patients be tested for FOP first before cancer?
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My nephew has just been diagnose of this disease, we hope that there is a cure for this disease oneday.
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I really hope a cure has been found by now... Or atleast treatment.
But, I know things will turn around for all of them and they will be ok again.
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What a shitty disease. I hope my future children don't have this.
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9:13
The Battle Against FOP - 2 of 5by devans853,185 views- 9:46
The Battle Against FOP - 4 of 5by devans852,649 views
- 6:31
Rare disease - causing patients to turn to stoneby peacemaker29174,175 views
- 2:42
Ashley Kurpiel shares her story and inspiration with Hitting The Reset Button.by HitTheResetButton17,679 views
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Tyra Banks Show - Ashley Kurpiel - FOPby droidnloid92,024 views
- 6:26
Boy fights disease that turns muscle into boneby 2006ami64,033 views
- 2:20
FOP Videoby Phantomsword19,540 views
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Jornada FOP Viviendo con FOP GR aviby moira2013,261 views
- 3:37
FOP Facts & Insights: Clinical Featuresby FOPNews1,460 views
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Mystery Diagnosis - FOP Part 1by droidnloid19,949 views
- 3:00
Discovery Channel - Human Mutants: Fibrodysplasia Ossificans Progressivaby mconvente2,141 views
- 1:47
Brothers Suffer From Rare Condition Similar To Vampirismby barcroftmedia26,970 views
- 1:07
Human Statueby MorningRushYT616 views
- 3:40
Jud Bogard - Goodbye Promise Kickstarter Interviewby GoodbyePromise676 views
- 6:54
Sam Adams and the Fight to Cure FOP: ITZ 009by ITZOnlineTV891 views
- 4:18
Discovery Health - Medical Incredible - Fibrodysplasia Ossificans Progressivaby jsg36121,309 views
- 3:54
Mystery Diagnosis - FOP Part 4by droidnloid13,691 views
- 9:27
The Battle Against FOP - 3 of 5by devans852,311 views
- 13:33
Mystery Diagnosis (OWN) - Hermansky Pudlak Syndrome - Part 1 of 2 - "The Girl with No Bowel"by tommytillman52,024 views
- 17:02
IFOPA Promotional Video (Full Version)by FOPNews1,353 views
I can tell you right now, Whitney is one of the most amazing people I have ever met in my life. Her story is inspirational. Her continued progression and growth as a person is amazing and something I cannot put into words. I am so proud to call her my friend and I am holding my breath until the day Whitney and everyone else affected by FOP can be helped. She deserves to be happy more than anyone, and what's truly incredible is that she is. She has an amazing spirit, and nothing will get her way.
TheSquirtSquad 3 months ago 4
Please help our family and other families to raise awareness for this devasting condition called Fibrodysplasia Ossificans Progressiva
319Hilly 2 years ago 3