Tysabri Recovery Series - Angela and PML

I am staying on Tysabri despite a friend, Angela, developing PML after 22 infusions of the MS drug. These are my thoughts on the situation and the risks associated with Tysabri

Category:

People & Blogs

Tags:

• Beachy
• multiple
• sclerosis
• Tysabri
• Recovery
• Series
• PML
• Progressive
• multifocal
• leukoencephalopathy
• drug
• risks
• LDN
• Betaseron
• Copaxone
• Avonex

[markolad]

My doctor asked me the same about taking a 6 month drug holiday but for me the benefits I've got from Tysabri far out weigh the risks I think If you've gone through the worst of what ms can throw at you you'd risk anything I know I would no matter what the risks where. And in a way its made my choice to carry on with Tysabri easy knowing how bad life was before. But as you said everyones different and its there choice.

[vbeachy]

@markolad

So true, Mark.

[markolad]

Hi Vern, I'm going next week for my 35th infusion will I hope I am I'm just getting over the Shingles but I just wanted to say I like your way of thinking I'm singing from the same sheet I to was in a wheelchair and was relapsing every 5 or 6 weeks till I started Tysabri I've been relapse free since August 2008 and I can walk without any aids and my ms is stable now I was asked to think about stopping it or taking it every other month but I'm more scared of stopping than PML :) Mark.

[vbeachy]

@markolad

Me too, Mark. I know my doctor asked me if I wanted to take a drug holiday, but I am doing so well on Tysabri that I don't want to stop. I think the risk of PML is so miniscule that the benefits far outweigh those risks.

[MrMDM2007]

Hi Vern,

I've been on Tysabri since early this year, and will not change to another medicine either. I've never felt (since my dx) as good as I've felt on Tysabri not to mention NOT having to deal with ANY shots and bad side effects.

Thanks as always.

Dave

[vbeachy]

@MrMDM2007

Hi Dave! Glad to hear it and, I agree, NOT having to deal with shots or bad side effects is HUGE in my book. :)

[qualisarx]

If you are consinsidering taking Tysabri their is a blood test to see if there is a major risk as per Norm #53

[ThePennygirl]

Life is a gift ! Bet now 17

[vrocavesna]

@ThePennygirl

I'm 32 years old, and in my case MS start to go very fast these last year, no Betaseron, Copaxone - nothing helped. I'm a gambler. I belive that will Tysabri work for me. It worty risk. It so little cases of PML.

You can die too if you eat any other pill or have bad side effects.

[vbeachy]

@kfoulk

Good for you! I need to get more exercise, especially with the colder weather setting in.