Our daughter has Phelan-McDermid Syndrome which is a very rare genetic disorder that causes a severe mental disability. She was 8 1/2 years old at the time this video was shot in January 2010. Kylie functions at about an 18-month old with her verbal communication skills. We had no idea she could learn to ski. Thanks to the great instructors at Chestnut Mountain Resort in Galena, Illinois! If you would like to learn more about PM Syndrome or make a paypal donation towards much-needed research to help kids like Kylie log on to www.22q13.org.
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We are a family with a special needs child that went to Chestnut after Kylie was there and they told us about this. They were so impressed by how well she did and we know how well it feels. We are very glad to see her do so well. The help at Chestnut was wonderfull and we all hope to see her back there again.
Congratulations to all of you!!!!!!
dmarkus200 2 years ago
Wow, Kylie! You're a natural. Thanks for sharing this with us. You are capable of accomplishing so much!
tornberg5 2 years ago
You're amazing Kylie! I knew you could do it!
amberruppert 2 years ago
i work at chestnut mountain resort down in powder pups i remember this day she did an awesome job that day. shes a great girl. tell her that i said to keep up the good work.
trose563 2 years ago
This is wonderful! Thanks for sharing!
mtgoldsmith 2 years ago