Fragile X : A Family's Story

This is the story of my family and Fragile x. My video production partner and I worked on this piece for our senior video project at Appalachian State University. I wanted a way to document and bring awareness to Fragile x. I hope this video will help other people that may have just found out they have Fragile X in there family.

Category:

People & Blogs

Tags:

• fragile
• X
• A
• family's
• story
• fraxa
• lopina
• adam
• tolbert

[Shannonbarnesdr1]

theres nothing wrong with being disabled, its just part of diveristy ;-) i am disabled and perfect

[melindam1970]

I have a 6 year old that has fragilex it really touches home. I would not give it up for anything.

[gailheyman]

This is a wonderful video, Adam, and thanks for sharing your story, your secret story with this short film. We, too, have a son with fragile X. Scott is now 31 years old and lives independently with support. I hope the same with for your family members. We learn much from our children, and our family has learned a great deal about compassion and understanding from Scott.

[messemer27]

My 2 year old son was just diagnosed with a full mutation, 530 repeats fully methylated. Your family is beautiful and like you, I hope to reach out to as many people about this syndrome. Knowledge is power. Thank you for posting this video. Let's find a cure!

[timthug1]

I stumbled on this video and it changed my life. Thank you for bringing this story to me it explained alot of my family history.

[birds16ful]

My best friend Carmyn have Friagle X. I have a disability too.

[DarkPortalRogue]

@Shannonbarnesdr1 I'd prefer the term 'enabled'. ;')

[mylovesofmylife]

These children in this video are beautiful.

[plhs987]

Thank you so much for sharing. It will help many people.

Grandmother of Emmet don't apologize or put a trip on this kid.

Children need freedom to just be and enjoy their childhoods unlabeled.

If everyone is tested then it most likely there are very few without some genetic flaw!