I ALSO HAVE CF AND HAD TO HAVE A DOUBLE LUNG TRANSPLANT JAN 23 2010 AFTER BEING REALLY SICK WITH CF ON OXYGEN MY LUNGS GAVE OUT THEY TOOK ME TO PITTSBURGH PA HOSPITAL WHERE MY FAMILY WAS TOLD I WAS NOT GONNA MAKE IT THROUGH THE NIGHT.THEN MY FAMILY TALKED WITH A DOCTOR FROM PITTSBURGH THAT DESIDED TO PUT ME ON THE ECHMO MEACHINE WHICH HELP PUMP UR LUNG IN TILL THEY CAN GET A DONOR WITH NEW LUNGS.AND HERE I AM DOING GREAT AFTER A YEAR LATER THIS DIEASE IS SO HARD IF YOU HAVE ANY QUESTION EMAIL ME
@jhalv88 i dont have cf but im waiting for a double lung transplant i wouldent mind asking you some questions about the transplant if youd be up for it?
You are truly amazing. Only 8 Days after surgery of that magnitude,and you're going home? Wow. It reminds me of when I was found to have an Ovarian Mass,the size of a small grapefruit. I had to have a partial Hysterectomy. Only they didn't know about the mass until they had me open. So,they remove it.
They had no idea about it's existence,but had found the problems I had,during my last pregnancy. Not enough room here,so I will send you a p.m. Human endurance & stubborn will to live. Amazing
@s678j was the transplant worth it and jus curious but how sick were u when u were put on the list?I am a 22 yr CF patient but Im pretty advanced i feel lost i need ppl who have dealt w this all my cf friends have past away God Rest Their Souls.If your not comfortable w answering me thats ok too.
@Riley1516 i do! i found a website a cpl of yrs ago that absoluetly awesome.there r cfers,parents of cfers,friends of cfers,drs,ect.its like a medical mysoace.msg me at tunerchick_jay65@yahoo n ill give u the website itll get flagged as spam if i msg u on here
i have CF and received a double lung transplant just 4 weeks ago about. i'm also 16 and would like to talk to others with CF. we can talk if you want.
I ALSO HAVE CF AND HAD TO HAVE A DOUBLE LUNG TRANSPLANT JAN 23 2010 AFTER BEING REALLY SICK WITH CF ON OXYGEN MY LUNGS GAVE OUT THEY TOOK ME TO PITTSBURGH PA HOSPITAL WHERE MY FAMILY WAS TOLD I WAS NOT GONNA MAKE IT THROUGH THE NIGHT.THEN MY FAMILY TALKED WITH A DOCTOR FROM PITTSBURGH THAT DESIDED TO PUT ME ON THE ECHMO MEACHINE WHICH HELP PUMP UR LUNG IN TILL THEY CAN GET A DONOR WITH NEW LUNGS.AND HERE I AM DOING GREAT AFTER A YEAR LATER THIS DIEASE IS SO HARD IF YOU HAVE ANY QUESTION EMAIL ME
dollop51 11 months ago
@jhalv88 i dont have cf but im waiting for a double lung transplant i wouldent mind asking you some questions about the transplant if youd be up for it?
boardingpass04 1 year ago
i am in last state b4 getting lung transplant. It is a miracle life i love to live
motconga 1 year ago
You are truly amazing. Only 8 Days after surgery of that magnitude,and you're going home? Wow. It reminds me of when I was found to have an Ovarian Mass,the size of a small grapefruit. I had to have a partial Hysterectomy. Only they didn't know about the mass until they had me open. So,they remove it.
They had no idea about it's existence,but had found the problems I had,during my last pregnancy. Not enough room here,so I will send you a p.m. Human endurance & stubborn will to live. Amazing
sugarlandsirish48fan 1 year ago
@jhalv88 hey Im a cfer too and i really need other cfers to talk to.im tryin to decide about transplant would you be willing to talk?
twiztedsweetness21 1 year ago
@celestpwll hey im attemting to get on the list would u be interested in talkin about it
twiztedsweetness21 1 year ago
@s678j was the transplant worth it and jus curious but how sick were u when u were put on the list?I am a 22 yr CF patient but Im pretty advanced i feel lost i need ppl who have dealt w this all my cf friends have past away God Rest Their Souls.If your not comfortable w answering me thats ok too.
twiztedsweetness21 1 year ago
@Riley1516 i do! i found a website a cpl of yrs ago that absoluetly awesome.there r cfers,parents of cfers,friends of cfers,drs,ect.its like a medical mysoace.msg me at tunerchick_jay65@yahoo n ill give u the website itll get flagged as spam if i msg u on here
twiztedsweetness21 1 year ago
@jhalv88 I am 17 yearsold and I have cf and am working my to getting on the list for a transplant at texas childrens hosp. we can talk
celestpwll 1 year ago
i have CF and received a double lung transplant just 4 weeks ago about. i'm also 16 and would like to talk to others with CF. we can talk if you want.
jhalv88 2 years ago