Rylee Nicole Rivett (640x480) (2).mp4

27.01.10 - Rylee was 16mths old when she woke up after her sleep with a slight left side paralysis..Straight away our Gp ordered me to go to our hospital who admitted rylee for tests and scans.We were told after an MRI hat Rylee had a cancerous tumor the size of a mandarin in her right side of her brain and that we will be transported to Brisbane Royal Childrens hospital for surgery, tests and a treatment plan.
Well my life as we knew normal was now a nightmare...I have 3 older children how do u tell them that theie little baby sister is that sick and mummy wont be around for a while...Its heart breaking...
Her first surgery was only to remove as much as they could safely for classification of what type of tumor.
It was 2 weeks later we were told it is a Stage 4 Medulloblastoma PNET tumor.
Our treatment plan is one researched from the famous ST JUDES hospital in America.
It involved 4 months of intensive Chemotherapy, more surgery to remove remaining tumor, 30 sessions of radiation and a 6 month course of oral chemotherapy. We are at that stage now the 4th month of a 6 month plan..
Our next MRI is in MAy 2011 and that will determine the future..

As you can see by the video, Rylee is my hero......She has gone through what NO CHILD should have to, she has learnt words that NO CHILD should have to, (drugs, steroids, needles, chemo, hurties etc)

She is a happy two year and loves life....I love her with all of my self being and she makes me a better person...

We will fight this disease and we will fight for every child having to deal with it also and we will fight to our friends that have been sent to the Angels..

Please visit our hospital website www.workingwonders.com.au and you can see how our hospital are working wonders for our kids...

Category:

People & Blogs

Tags:

• Brain Tumor
• Medulloblastoma
• Childrens Cancer
• Cancer
• Working Wonders

[nikkiriv1]

@terrazasjudith

Thank you for your prayers.....and Rylee is on a St Judes protocol treatment plan here in Australia and she is doing really great..........if you would like to contact me and I can answer any questions or be of any support please dont hesitate...my email address is nicole.rivett@three.com.au....­...as you can see we have been fighting just over the year.......I have faith in the drs and so far so good. I will keep your neice in my prayers...

[terrazasjudith]

thats very sad i hope everything will turn out alright. we will be praying for her..my neice is going through the same thing she is 3 years old and also has stage 4 PNET tumor she is at st judes hospital..we found out about a month ago and its been very hard..im very sorry about you daughter.