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From the Heart - Niemann-Pick Families share feelings (pt1)

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Uploaded by on Nov 10, 2008

Families of individuals who suffer from Niemann-Pick Type C (NPC) disease share their feelings and experiences.

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  • Thank you for sharing your families situation. My family and I are suffering from this disease as your family is as well. My nephew has Niemann Pick Type A, and I will not give up on my nephew who is displayed on my profiles pic. My nephew is my inspiration and my light, and that light will never go away! allow me to hear your story as I will tell you our fight. thank you and god bless you and your family.

  • At 3:19 into this video there is a man in a blue shirt with NPC. My 30 Y.O. son Justin may have this disease: we are going to get the skin biopsy test done for sure. Anyway, there is a striking resemblance to this man. God Bless you all in this fight!

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