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Maddie's CDH Story

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Uploaded by on Oct 9, 2010

Maddie Lynn May was born with a Congenital Diaphragmatic Hernia. CDH is a life-threatening condition in which the diaphragm fails to form completely. This allows abdominal contents to travel into the chest cavity. In Maddie's case, only her small intestine herniated into her chest. Still, this significantly reduced the space her lungs had to grow. Additionally, her heart was pushed to the right side of her body. She had a corrective surgery when she was six days old. The surgery went well, but we still had a very long road to recovery. After two months in the NICU, we were finally able to bring her home.

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Uploader Comments (stilettosativa)

  • @jd it'll probably get harder before it gets easier, but it will get easier. and as much as it seems like it will never end, it will. just stay positive! I wish you, your family, and baby ava the best of luck. thank you for sharing your story. :)

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  • What a great video! She's so cute!

  • Beautiful Baby, Beautiful Story. Watching Maddie's vidto is an inspiration to me as I sit a few feet away from our CDH baby, Ava Elaine, born 10/22/10. She's had her repair surgery and in the process of being weaned off ECMO. Thank you for sharing, God Bless Maddie and your family. Mommy Jennifer Dickerson.

  • what a beautiful little baby i wish i could hold her love you Maddie

  • Wonderful video! This is what it's all about!

    Best wishes from CDH grandma Shelly!

  • Just Awesome.... The video is a reminder of how far she has come and how lucky we are to still have sweet little Maddie with us.

  • Good job! It's always great when things remind you of where you were and how far she has come, a bit humbling, remembering how much of life we take for granted...

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