left leg fasciculations (or whatever they are)
Uploader Comments (TheUndiagnosed)
All Comments (22)
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look up depersonalization you may have it
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Your B12 level can be "normal", but what's normal for one person may not be normal for another. A more accurate test is a urine MMA level. Google for more info, also check out the book "Could it Be B12"....
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ILADS . org
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The lyme bacteria morph from spirochete to inter/intracellular and even cyst form so can evade blood test detection. LIke I mentioned, 3 negaitive tests over several years before I finally got my positive. My fasciculations started in my calf and moved to both calves, then up my legs. I now get them all over but antibiotics have helped a lot...been on 1.5 years.
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Negative tests for Lyme/borrelia are a crock. You need a Lyme litererate md. The lyme bacteria morph from spirochete to inter/intracellular and even cyst form so can evade blood test detection. LIke I mentioned, 3 negaitive tests over several years before I finally got my positive. My fasciculations started in my calf and moved to both calves, then up my legs. I now get them all over but antibiotics have helped a lot...been on 1.5 years.
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This is lyme disease. I had same thing and went undiagnosed by many neurologist. Wish I knew then what I do now.
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Have your Thyroid gland checked. I have these, too, and have many other symptoms of a Thyroid problem. I went to the ER for my muscle twitches (mine started on the right side of my face. I was told it was stress...perhaps a potassium deficiency. They gave me a muscle relaxer. I wasn't pleased with that, so I did some looking around on my own, and I'm convinced I have a Thyroid issue. I am a guy, and men DO have Thyroid issues.
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I have fasciculations everywhere, all over my body. : )
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ilove fasciculations
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8 mins is along time when i have fasciculations, they usually last a few seconds or up to a minute or 2
Wow.
I'm starting to develop this, along with foot numbness(usually my left foot).. should I be worried? It lasts no more than a minute or so.
ImmortalDragon 2 years ago
I have noticed that my limbs go numb (fall asleep way more often/easier than they used to). Not sure if this is what you mean with numbness.
No idea if you should be worried. Actually I don't know if I should either.
I've been having this for 8 months already and still ok (or mostly)
good luck
TheUndiagnosed 2 years ago
Please go and have your pH level checked to see if you have alkalosis or acidosis. Also, have your potassium checked. You may have either hypokalemia (decreased potassium level) or hyperkalemia (elevated potassium level). In either situation you develop cardiac arrhythmias which leads to cardiac arrest. Don't play with this, demand to be tested for this by your doctor. Please report back, I will watch for your post. This is very serious.
gigiontube 2 years ago
I had a potassium test on february '09 and it was normal 4.1mmol/L. I had another on august and was also normal 4.4mmol/L .
Asked about the PH level test and the GP didn't think it was relevant. She did prescribe magnesium pills and have been taking them for more than a month and since then my twitches seem to have decreased in intensity and frequency. No idea if the magnesium had anything to do with it, GP didn't really have/give any explanations.
Thanks a lot for the help.
TheUndiagnosed 2 years ago
One other thing... have you had an EMG, and MRI? The other test that is a sure thing is a lumbar puncture.. spinal tap. It might give you real peace of mind to get one. They aren' t that bad. Will rule out everything..
If you don't have muscle wasting you are OK...your other symptoms are strange but they dont sound like ALS
kodwyerr 2 years ago
Haven't had an EMG, but I did get a brain MRI (had to convince the dr to order it). Supposedly clean. Also both neurologists I saw pretty much treated me like a hypochondriac and didn't seem concerned about my symptoms. The first one suggested I relax and go get a massage(?). The other an antidepressant (which I never took).
I guess If i had ALS I would be on a wheelchair, or at least would show more obvious signs by now (or so I like to think)...
TheUndiagnosed 2 years ago