Input Needed, Awareness vs Health Care and Vlog, Plus Dr issues? CTDs, Lupus, MS, Crohns, Autoimmune

Would like viewer and subscriber input on Channel decisions... You guys are at least 90% of this channel and why we're getting the view counts and new sub counts. Also, Doctors not understanding connective tissue and/or autoimmune diseases enough to diagnose them in a timely fashion... If you've gone through, are going through this, please, do not give up, you are not alone. When you see a doctor, he or she is getting paid due to you choosing their services, it's okay to interview a doctor, to seek second, third, fourth opinions.

Category:

News & Politics

Tags:

• Autoimmune
• steroids
• people on steroids
• steroid effects
• connective tissue
• sle
• sle lupus
• lupus
• discoid
• MS
• Multiple Sclerosis
• Sclerosis
• Crohn's disease
• disease
• illness
• doctors
• diagnosis
• treatment
• treatment options
• lupus treatment
• MS treatment
• Crohn's treatment
• autoimmune treatment
• symptoms
• psorisis
• arthritis
• rheumatory
• rheumatory arthritis
• joint inflammation
• joint stiffness
• inflammation
• inflammatory disease
• inflammatory
• yt:quality=high

[Michellemlm]

Thank you so much. I like those ideas... Also, I'm in the process of starting an organization.. one for CTDs and all Autoimmune diseases.. One for Lupus and both will have their own websites, the ability to blog, have support forums and more... but it will be volunteer-based ran by people with the diseases (as well as professionals who specialize in the diseases.. both sites will be for support purposes but also all proceeds or any donations every received will go 100% to research.

[Michellemlm]

Thank you. Yes, I think with 2 channels I can talk about anything on the one& then it won't take away from awareness supportive or educational videos on this channel.. yet, I'd still be able to talk about serious issues or vlog about fun things too on a separate channel without it hurting the cause of this one.

Would love to go to Canada for medical if I could. They don't allow for us to come for that sole reason. If I were visiting and something happened, then I could.Or I'd need citizenship.

[Ladyshystar]

YOU LOOK GOOD TODAY! THE ROIDS ARE KICKING IN! Re: BringIT. My husband has been trough hell with this. My daughter has NEVER KNOW ME WELL. Its hard sometimes. But you have to get over the why me and all that stuff and FOCUS ON Survival FOR YOUR "FAMILY". Thats what kept me hanging in through all the MESS. HANG IN THERE BRINGIT! I dont know what kind of a lady you wife was before she got sick but I DO KNOW SHE IS GOING TO NEED YOU NOW. YES AT TIMES IT IS HELL, but life is WORTH FIGHTING FOR..

[Michellemlm]

Yes,right now, from the front, they are making me look YOUNGER lol As long as I don't turn my head-it's not too noticeable on camera, yet. I've been on high-dose for 1-1/2 yr now, but they were lowered briefly& I was starting to look like myself again.Now I'm puffing up &getting the facial changes again. Pretty soon, I will look 100% not like me. It's weird how it changes the face so much isn't it? Also, Thank you for your supportive comments to others. Encouragement helps so much.

[AnotherSoulToClingTo]

I am on Medicaid and I can't get any good healthcare. I have all the symptoms of lupus and I have not been treated well. I wish more attention would be brought to the subject of discrimination against people who have no medical insurance. I have been to some of the crappiest doctors where I am left with my jaw dropped because it seems like I knew more than they did. I just can't believe how different you are treated when you have Medicaid/Medicare. It makes me sad.

[Chadstravels]

Have you tried anti biotic therapy like 'the marshal protocol'? If so did it help you?

[kookieduck61]

I think than anyone with Lupus is going to be intensely interested in health care issues, comments, suggestions and information. I say put it all on one channel!! If there is anyone out there with Lupus that hasen't had any insurance/healthcare issues I'd like to hear from them!! To me, Lupus, healthcare and insurance can't be separated. (Sorry for my bad spelling.) This is just MHO. I like your videos.

[philosophical29]

Hi,

I had RA for 13 years,recently developed lupus, within 7 months lost my kidneys. So just like the RA, the lupus is aggressive. Also, have a lot of sjogren symptoms with no longer producing my own tears and painfully dry eyes.

Had to deal with a lo of insurance issues off and on.

So very interested in your channel and your blog. I am political. a humanitarian. and I feel democrats care about the people more. I don't think getting healthcare is political however. I am with you on that

[WillowDove40]

I would subscribe to as many channels as you had! I'm SO glad you shared all that about shopping around for a doctor. Too many people just blindly go and trust them without asking any questions. They aren't GODS!! They're humans and they work for us! I almost died because I stayed loyal to a doctor for too long. As soon as I fired him and found another I was diagnosed and put on the right path to healing within a month. As you can see I'm passionate about such things. Thank you! Love and Light

[Ladyshystar]

Hi Michelle. Well this has taken off like wildfire. Good for you!  LOTS OF US OUT HERE WHO NEED A FORUM. I think you should have 3 channels. One For awareness and updates, One for people to vent and bounce thoughts and feelings around on, and 3 THE ONE FOR YOU TO EXPRESS YOUR BLISS.

[TAMMpON]

I can't thank you for all that you're doing Michelle!:-)

I am sorry that you have too deal with so many health issues, but I support all that you support!:-)

YOu would never offend me as I am not into politics, but I believe we all should be covered medically!:)

If you do make more channels please inform me as I will support them all!:-) Take care and may you have a pain free and beautiful channel!:-)

You know you're doing great is when you have haters!:-)

peaceouTy!

TAMMpON

[itsme123445]

good video