Multiple Sclerosis - Paroxysmal Dyskinesia.mov
Uploader Comments (MsMsfree)
Top Comments
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This really does make me appreciate the fact that I'm quite healthy...I never really tend to think about it or be grateful about it. Life could be so much harder...I find it sad that we all tend to forget that
You're really brave for posting this. Thank you for opening peoples eyes to this disease
All Comments (104)
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@Raybi3z mate, it only helps numb some people's pain - it kinda dopes people up and distracts them.....it certainly does NOT work for everyone. :)
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I was diagnosed with 'MS' in November of '06 - I struggle with things but NEVER behave or set myself up to hurt myself as THIS embaressment has. Beware 'sufferers' who try to become YouTube-Famous through their disease - there's always a lie in there lurking in the shadows. lol
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You should be ashamed of all the ridiculous and pathetic over-acting shown here. CANNOT believe that people have jumped onto this thinking (because of YOUR introduction) every person diagnosed with 'MS' goes through this. ATTENTION GENERAL PUBLIC - we do NOT!!! This is overacted crap set up to get your pity....and not your understanding or true respect.
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I've had improvements with my balance, hand writing, energy level has improved, very, very seldom do I feel the girdle effect, regular and normal consistency with stools. I've not had any bad side effects, on the other hand my eye lashes are thickening, strong nail growth, and better complexion. I've always felt that the medication for MS gave a person worse side effects versus helping so I've never been on any medication for MS other than Benadryl for itching.
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@MsMsfree I wanted to pass along this info thought you might want to check it out. I was diagnosed with MS in 1981, fortunately my pain is in no comparison to yours. I started taking Virapress on January 3, 2012.
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I want to wish you and your family the best of luck & may we all one day be able to rejoice when a cure is finally released. We are all an MS family full of strong men, women & children. We all will continue to fight and raise awareness.
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I want to start off by saying thanks for sharing this video. It shines a bright light for the people who have no idea how Multiple Sclerosis attacks everyone's body differently. I myself have RRMS & was diagnosed in 2006. I've had over 9 extreme exacerbations that left me hospitalized for weeks at a time & small ones that could be treated at home through tapering off steroid treatments. I would really like to commend your husband on sticking by you and helping you along the way.
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I'm from Brasil.... I'm really sorry, for us, humans, don't find the cure yet....
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@SuperFrank1952 Paroxs. Dysk.or drop attacks is what this was called. An extreme exacerbation. If you have MS you know that it affects everyone differently. I have RR. Sorry that you doubt the validity of this, but I wasn't getting steroids for the hell of it.
@MsMsfree Thanks for precisions. Yes I have PPMS and I just want to believe in your video. Anyway, I wish and I don't think it's important for you that every body should be convinced that your video is not an hoax. Gd luck(outof space)
@ Emiluh377- it breaks my heart to hear this. If you have Facebook, please follow me on my page "MS Awareness and Ellen". I would very much like to keep an open contact with you and your mom. Send love all the way from Texas!
MsMsfree 3 months ago
Jenna, I thought about posting this video for 3 years before doing so. I've had MS for 13 years and if you had maybe read my reason for posting this, maybe you would not have made your comment. PPL will always look to the internet to look for why and what and this is part of the reality of MS. I am on medication for MS, and getting ppl upset about this and all the other videos on MS is my intention...it brings change and awareness. Thanks for helping.
MsMsfree 3 months ago
I am a 4th semester medical student and wanted to see what this unfortunately famous disease MS looks like.. it doesn't look that terrible in our books when it's described with words.. I have no words to describe how sorry I feel to imagine that so many people are actually suffering from this disease.. it is very unfair. Stay strong and stay positive as much as you can!
Eldarione 3 months ago 9
@Eldarione Hi, you just summed it all up. I appreciate your response and your thoughts. Please, follow me at MS Awareness and Ellen..I think you'll be surprised and hopefully motivated to help us.
Take care, and good luck with your residency.
MsMsfree 3 months ago