Coffeehouse for a Cure slide show 2009
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Uploaded by dkacams on Feb 18, 2009
NF heroes inspire us to work for a cure!
Uploader Comments (dkacams)
All Comments (4)
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Thank you so much for putting this informative video together! My sister is in the slideshow, and my mom and I hope to travel & be at the next Coffeehouse for a Cure to help support NF!
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It's a wonderful video. I was a very big part of the NF endurance team before my family and I moved back to Australia. I've met many wonderful adults, and children with NF.
I saw some of my adult NF friends in this video, and I have very fond memories of all the races I ran, and the people I met.
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Wow! A great video, but I do agree with
bostonsholar. What about us adults who
also have NF? Why not also give us a chance to show how NF effects us?
We may not be little with cute faces, but we do have NF and have experienced NF in many ways.
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good- but why focus so much on kids? We adults dont get much attention in reference to nf
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Many of the adults in this video DO have NF....the focus is more on children simply because a) when I requested pictures from NF families, this is what I got, and b) in our family, it is our child with NF who has had the tougher fight at this point, not the adult...our energies have been admittedly skewed towards the issues our daughters face with NF, since those have been life threatening; Please know that whether obvious or not, many of the adults pictured here DO HAVE NF. Thanks!
dkacams 3 years ago