Victoria CCSVI Patient Information session

A panel of six people treated for CCSVI held a community CCSVI information session August 9, 2010 in Victoria, BC. With an introduction to CCSVI from Dr. Bill Code, an MS patient himself, the patients related their experiences being treated in clinics in Poland, Mexico, and the US. This was followed by an hour long question and answer period. Approximately 275 people attended. The group is now planning additional CCSVI education and advocacy events -- to register for upcoming notices, contact sandra@nationalccsvisociety.org

I moderated the information session and told my patient story being treated for CCSVI. You can also follow the CCSVI Facebook page I maintain that tracks BC, Canadian, and worldwide happenings with regard to CCSVI and offers support for people seeking information and treatment. All future events will be posted on Facebook: http://www.tinyurl.com/bc-ms-clinics
*note* my description of my left jugular vein stenosis on the video is incorrect -- the vein wall was slightly damaged during angioplasty and partly obstructed the vein within the existing stenosis. The second ballooning rectified both this damage and attempted to fix the stenosis. Two and a half months later, I learned my left jugular vein was still not flowing correctly and requires retreatment.

Category:

Nonprofits & Activism

Tags:

• CCSVI
• MS
• Zamboni
• multiple
• sclerosis
• liberation
• treatment
• chronic
• cerebrospinal
• venous
• insufficiency
• Poland
• Mexico
• Albany
• New
• York
• results
• costs
• angioplasty
• venoplasty
• venogram
• stenosis
• MRI
• MRV
• ultrasound
• Dr.
• Haacke
• False
• Creek
• Bill
• Code