JW MNDA Sarah's Story 90" H264 Hi Res
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@lickchick14 are you serious? I have PLS Primary Lateral Sclerosis and I can type just fine for now. Rate of progression is different for everyone with a MND - Why would someone with a heart ask such a derogatory question like this? Just Curious
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ELA... Esclerosis Lateral Amiotrófica, infórmate sobre ella. Haloperidol, Sialorrea, Morfina, Codeína, Vía Subcutánea, Hidratación, Disatría Severa, Alimentación, Fentanilo, Vómitos centrales, Extreñimiento, Tramadol... Escúchala, Acompáñala, Préstale tu tiempo, Empatiza. He aprendido más de lo esperado. Gracias por el curso básico de Cuidados Paliativos, deseando hacer el intermedio y el avanzado.
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The people who are commenting that they have MND, how are you able to type?.. Just curious.
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This is so powerful and timely and certainly shook my and muy lovely lady out of our quietude. There is no hiding. I was diagnosed a couple of months ago. My first wheel chair arrives next week.
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I was diagnosed with MND in June this year (2011) but my symptoms date back to December 2010. I'm now unable to work and even doing small simple tasks has become a real nightmare.
But in the words of Winston Churchill.. never give in, never, never, never.
And I intend not to. There is a cure for this disease, they just haven't found it yet.. or is it they haven't found a way to make money from it yet?
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This has happened to a friend of mine...she is the same age as me...and all the peeps I went to school with...it has been enough for us to want ot do something special....make a difference....tick boxes on her bucket list....what are we going to do about Maria??? How do you hold a moonbeam in your hand.....we can do alot...actually :)
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@cirraxlankart In nov. 2010 I was told I have this disease and some of these things are starting to happen to me. And I am very scared.I think that Sarah was the BRAVEST Person for Doing this Video.And I thank you for explaining this Video.
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I think that Sarah was the Bravest person> I wish I would have got to meet her.
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The video was banned because of the scenes with the woman who really has MND. Her diminished limbs were deemed too disturbing by clearcast. (they said they could air all the violent parts but leave out the end shots of the real sufferer)
Talk about being ass-backwards.
MuNkaPOtaMuS 2 years ago 8
written and directed by someone with MND, 'nuff said.
nickoli82 2 years ago 8