NF-1

Information on NF-1

Category:

Education

Tags:

• Information
• on
• disabilities

[Shahzada1prince]

I Have NF-1 too, but no one in family have this genetic disorder its only me who is suffering and more worried when I heard that there is no treatment for them.....As iam going to marry, just wondering what is the probabilty that dis genetic order will transfer to my children.......

[MAB4602]

Based on the information from the Children's Tumor Foundation, there is a 50% chance that your children will have NF-1. I am sorry that that is the case, I wish it wasn't. I am sorry that you have to suffer through this genetic disorder as well. If you have any other questions, please don't hesitate to ask me. God Bless!

[tombraider247]

both me and my brother have nf1 so did my mum and grandad. thank you for puting this up

[MAB4602]

You are very welcome!  God Bless!

[DeaMus32]

@Shahzada1prince ya but it has incomplete penetrance, therefore fifty percent chance of passing on the bad genes, but not half will get it

[toroga1]

This is like a school report. Chillax! Just talk

[ls4ever999]

@Shahzada1prince if its too lat sorry my docter told me its 50/50 50 percent of ur children will have it so if u have 1 it be fine if u try for another it be 50/50 so if u have 4 2 will have it 2 will not thats what he told me or thats wat i remember

[5311hellokitty]

i have nf 1 and am 18. i feel that there isn't enough information out there, and that I can't really talk to people because they don't understand what it is.It might just be me that is like this though but... its May which means it is nf awareness month So please spread the message about this :)

[Jamez1391]

i have nf i have alot of birthmarks and a tumor behind my left eye which causes me to be blind which means i cant drive which sucks but im glad to be alive its not deadly u jus gotta keep ur eye on it so think u so much for this video

[bullbrooke]

i have NF1 i have more than 6 birthmarks, but im lucky to not have any tumours as of yet. but can i still get them anytime soon?

[burncruises]

@Shahzada1prince 50/50

[AndreaCosco]

i got my eye removed last week because i am turning 30 and i haven t have a date yet due the fact i am very self conscious about the way i look. I only have a neurofibroma on my skin and i cannot imagine the pain some people had to bare growing up. I am barely cope with mine and i am lucky i have a strong persistance toward my ed...and i think you did a great job with this video thank u

[generationkill791]

i have nf1 and so do my sons its great that you are informing peeps about it i have it but not that bad i have the bumps