What Is Ehlers-Danlos Syndrome?
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@Madcowboy02 w.ednf.org/index.php?option=co
m_content&task=view&id=1347&It emid=88888968 -
My friend has just been told she has vascular ED after a heart and lung scan showing major abnormalitys. I am both scared and worried for my her and wondering if anyone can suggest a good place I can get more info on this. It's just so I can fully understand and be there for her. Thanks
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i have hypermoblity syndrome and has many cases of EDS in my family and until i watched this video i thought i was well educated (self educated) on EDS. Thank you for my further education :D
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an for Puerto Rico I wish finally find the cure for that sindrome.God Bless you all Yaliza Lacen ....
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@silentfades Hey I never meant to offend anyone...I actually do have Ehlers-Danlos Syndrome and just finding out that I have the Chiari 1 Malformation along with spinal cord tethering, probably leading to brain surgery...I really do believe the braces we well are great for people with EDS. I have chronic subluxing of my hips and shoulder joints...actually am have left this job since I posted that because of how bad my symptoms have gotten over the last few months...
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@Shegetitfromhermomma your a pompus ass and remember this karma is not kind -
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I suffer from EDS type III, and all I can say is that more people need to be educated about it. Thank you for the video.
inhellwithelle 1 year ago 8
Though 50% of EDS cases are inherited from a parent another 50% of the cases are caused by spontaneous mutations without a parent having the mutation or a family history of the disorder.
EhlersDanlosEDS 2 years ago 2