Ataxia Angel : Marguerite Black - Friedreich's Ataxia

http://margueriteblack.blogspot.com A peek into the life of Marguerite Black, who suffers from Friedreich's Ataxia, an inherited disease that damages your nervous system. The damage affects your spinal cord and the nerves that control muscle movement in your arms and legs. In severe cases, people become incapacitated.

Life expectancy is approximately 30 - 40 years.

There is no cure, but we always have hope...

Category:

People & Blogs

Tags:

• AtaxiaAngel
• Marguerite
• Black
• Friedreichs
• Ataxia
• Disabled
• Wheelchair
• Dandelion
• Diary

[shadow96433]

good vid. i have this too im 28

[Music4ever400]

Hi i have fa to but uv shown tht i will still enjoy myself when im older ty this has inspired me

[ct89ccx]

I also have FA , and now i will try Idebenone in high dosage to see if there is any change in the behaviour of FA. And by the way, treatments for FA are available in US labs , but they don't make it public. Human frataxin is available for sale in US labs. As you know, in FA there is not enough frataxin produced by the mythocondria of our cells. May God touch the hearts of those who have the cure and keep it hidden from the people who need it...

[osamabinzaid2nd]

@mxzero3productions

I have a neurology exam in 5 days.. and i was reading about these in my book.. So impersonally, so coldly..

I feel my legs are gone now.. being a doctor doesn't just mean to know the disease.. One must also Feel the pain of the other human being...

We will find a cure for this, God Willingly!

[mxzero3productions]

i have this aswell im 18.

[kobus7z]

beautiful Marguerite :-)

[cherry196201]

iam also sufering from fredich ataxia my age is 26 male so there is any cure

[tsotsi42]

Great video boet. Hard not to break the tissues out. She is a beautiful person. Lots of love to you both.