This 13-minute documentary explains the effects of FSH muscular dystrophy and the important research being done to combat this debilitating genetic disease. Featuring individuals whose lives have been touched by FSH, this video educates the viewer while offering a deeply personal perspective on FSH. This documentary is gripping and informative, reminding us all of life's value.
i suffer from fshd, i was diagnosed about 4 years now.My mother noticed the same symtoms with the winged scapula when i was 15, i attended physiotherapy and visited doctors, but no one knew what it was. Finally over a year later i did the genetic tests and got the results. in the past year my legs have dereriorated a great deal, they get tired easily and i trip up somtimes aswell. however i have recently been thinking about the scapula fixation surgery? has anybody had it done? thanks :)
turlyer123 11 months ago