Trisomy 13 (Patau Syndrome) Long Term Survivor Living
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Uploaded by ThereseAnnM on Jan 25, 2009
http://tinyurl.com/trisomy13archive http://www.trisomy13archive.com
Natalia is one of HUNDREDS of SURVIVORS living with Trisomy 13, Trisomy 18 and other Related Disorders
LWT13 - http://trisomy13archive.com/trisomy-13.htm
SOFT - http://www.trisomy.org
TAG - http://www.trisomyadvocacygroup.com If you've been told there are no survivors, you have been Mis-informed. There are 100's of LONG TERM SURVIVORS living years... on Trisomy Support sites - Do your Reseach, Educate yourself, Get informed, Advocate for your precious child.
Along with over 200 T13 Treasured Memory Album pages
http://trisomy13archive.com/trisomy-13-memory.htm
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About the video:
~Hearing laughter from the other room I quickly walked toward them and grabbed my digital camera to catch this playful moment.
Jacob & I were both surprised with her quick yah-yah-yah response. Natalia can babble a bit, say ma-ma and a ya-ya ...but does not talk like you or I. However, she is able to let us know very clearly what she needs. This response was priceless! She has a spirit of pure JOY that she brings to our family everyday. So glad we can share a bit of our day and our very special child with you.
For more amazing children who are living with trisomy 13 and those families who have treasured memories, go to
Current Living with trisomy 13 Patau Syndrome Support
http://www.trisomy-13.com
http://www.livingwithtrisomy13.org
Embracing LIfe ~ One Moment at a Time
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Uploader Comments (ThereseAnnM)
All Comments (10)
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I have to say you are one of the lucky ones. God bless her. I'm proud of her without knowing her.
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oh she's such a cute happy child :) God bless her ! May she be always smiling and happy :)
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she is so cute x3
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You are one of the lucky ones. Bless you all!
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beautiful!! I love Natalia!
xoxo
luv,
jessie
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What a happy lovely girl!
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aaargh!! I cant stop watching this!! I love Natalia!!! (And I have never met her. she is too durn cute for words. Please give her a kiss from me.
MWAH!!
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yeaa im the one givin natalia the backride
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NIEW Trisomy Advocacy Group - Trisomy HELP
trisomyhelp (dot) org
SOFT Support Organization for Trisomy 18, 13 and Related Disorders
25 years Supporting Families
trisomy (dot) org
ThereseAnnM 1 month ago
ha, Kiss given! mom
ThereseAnnM 2 years ago