My Second Tysabri Infusion Living with Multiple Sclerosis
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Uploader Comments (spikegrl1000)
All Comments (13)
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oooch I have PPMS niddles hurt $%"%"$%" love to you x
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I understand how you feel totally. My mom died a week before my diagnoses and I pertty much do all my tests, Steroids, apts alone. Its hard. Hang in there girl!-Kitty
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So how are we doing in between infusions ? Too early yet for good things ? I suppose stability would be good too.
Bueno.
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Hi Spike,
Hey you disappeared then ! Well how ya' doing since ? Too early to say ?
G'Luck....Mumfred (Steve)
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Hang in there. I had my 18th tysabri yesterday. I always think that this med should be my cure-all, but it is not working in that direction for me. You may start seeing a change after a few more treatments. Try and stay positive. Thinking of you.
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I've been where you're at. Stay strong and take care of yourself. I just had my 15th Tysabri infusion yesterday. It takes time for the medication to work. I didn't feel dramatic results at first either. I was on both Rebif and Copaxone before the Tysabri, and they weren't working. You're not alone.....
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I know is easy to say it; but, your thinking is the last lane of defence when it comes to your finality, once it is gone, you are gone!
Empower those toughts of yours and believe that tomorrow would be better1
Cheers and the best to you!
13triki 4 years ago
Thanks Triki! I appreciate the comment, right back at you! Peace out and keep on hangin on!!
Steph
spikegrl1000 4 years ago
Hang in there friend! From what I've heard from others it takes 4-6 txs to really start feeling the difference sometimes.
aguadvr 4 years ago
Sorry it's taken so long to respond. Knock on wood I've been feeling a lot better than normal so maybe this crap is working?! I had my 3rd infusuion last week so keep you're fingers crossed!
Peace out Aqua!
Steph
spikegrl1000 4 years ago
Bad days come & go, but the one thing it's important to keep constant is your commitment to doing the best you can for youreself. Keep up the treatments and give Tysabri a chance. No medication in the world is 100 percent perfect, but Tysabri has done wonders for many, many people. So far over 20,000 MS patients taking it, with no dire side-effects and many, many with greatly improved quality of life.
kayaksurfer70 4 years ago
Thanks for the kind words of encouragement.
spikegrl1000 4 years ago