Rare disease Day 2011: Mastocytosis- Essential Thrombocythemia

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Uploaded by on Feb 27, 2011

Rare disease Day 2011: Mastocytosis- Essential Thrombocythemia
Filmed in Brooklyn New York
by Jennifer Dratch. Ambassador of New york state Nord rare disease day 2011

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  • 'Sup Jennifer?!

    You seem like one fierce lady!

    I just got active on YouTube again, was browsing through videos for entertainment, & thought, "Hey, I should search for my disease, see if anyone else with this (ET) has posted anything about it." And there you are.

    I'm 29, was diagnosed when I was 15. It's a bullshit disease, eh?!

    Anyway, stay fierce!

    -Will from MN-

  • Love it :) ..you rock! Be well girl <3

  • Hi Jennifer! I also have Essential Thrombocythemia. I just posted my own Rare Disease Day video, and saw yours. I wanted to tell you that I love your attitude! Way to go! Best of luck with your treatment, and great video, too :)

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