Rare disease Day 2011: Mastocytosis- Essential Thrombocythemia Filmed in Brooklyn New York by Jennifer Dratch. Ambassador of New york state Nord rare disease day 2011
I just got active on YouTube again, was browsing through videos for entertainment, & thought, "Hey, I should search for my disease, see if anyone else with this (ET) has posted anything about it." And there you are.
I'm 29, was diagnosed when I was 15. It's a bullshit disease, eh?!
Hi Jennifer! I also have Essential Thrombocythemia. I just posted my own Rare Disease Day video, and saw yours. I wanted to tell you that I love your attitude! Way to go! Best of luck with your treatment, and great video, too :)
'Sup Jennifer?!
You seem like one fierce lady!
I just got active on YouTube again, was browsing through videos for entertainment, & thought, "Hey, I should search for my disease, see if anyone else with this (ET) has posted anything about it." And there you are.
I'm 29, was diagnosed when I was 15. It's a bullshit disease, eh?!
Anyway, stay fierce!
-Will from MN-
FixedUpNice 7 months ago
Love it :) ..you rock! Be well girl <3
Cocoapuff68 1 year ago
Hi Jennifer! I also have Essential Thrombocythemia. I just posted my own Rare Disease Day video, and saw yours. I wanted to tell you that I love your attitude! Way to go! Best of luck with your treatment, and great video, too :)
Vaire70 1 year ago