I have Multiple Sclerosis & NO ONE understands
Uploader Comments (ms26babe)
All Comments (145)
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the guy just left you? knowing what condition you are in? wow. ...SCUMFUCK.
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YOU ARE STRONG...I WAS FEELING SO BAD THEN I CAME ACROSS THIS VIDEO.
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All I can say is I can relate. I was dx with MS February 12th of this year. My husband also told me I was just being lazy (along with his family)
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Some understand more than you know, I do probably because I'm in the same situation. It is important to remember that “acceptance” does not mean “giving up” or “admitting defeat”. It's the place where you can begin to discover the "tools" you will need to fight this disease. You have a very beautiful smile.
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There is now a Reformed Multiple Sclerosis Society that is urging for the medical community to check out Dr Paolo Zamboni's discovery that MS is caused by poor blood drainage from the brain. The answer to restore blood drainage from the brain is angioplasty. Watch the before & afters for this surgery called CCSVI on youtube- simply amazing. In just 24 hours a world of difference. Standing on one foot eyes closed in just 24 hours!
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I am probably days from being diagnosed with ms. :( It has been suggested by a couple doctors that I have this disease. Now the more research that I do on it the more that I am convinced that I have it. I have a multiple of the same symptoms. It is tearing me apart. Skier, backpacker, mtn biker. :( I too have had friends that don't even talk to me anymore and my mother still insists it is a pinched nerve. I wish someone would just call me and ask me how i'm feeling today. ;(
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Great video, I am a huge advocate for M S Support Groups. I have a wonderful, supportive support system of family and friends, but they don't/can't understand how I feel. Fellow MS'ers can.
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you have such a beautiful smile! <3
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I know how you feel, I have Lyme Disease and no one understands... Bless you, you're a wonderful woman.
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Hi hun I have recently been diagnosed with MS, I enjoy watching your videos nice to see someone from the uk doing a video. What neurologist you under at Hope Hospital? im under Dr Richardson xx
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@sugarmagnolia506 hey! at lease u have your brother helping you! my brothers dont even care! all they think about is themself!
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im going to the doctor on july 5 2011 to see am i one of the few to have two different disease!! MS is one of them! now i have to see do i have neurofibromtosis! 90% chance that i have it! along with my daughter! shit sucks!
now most of my family treat me like im disable!
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I do not know the feeling of horror if I had children and MS. I was 15 when I was diagnosed with MS and I just was worried about the idiots at my high school making of me when I couldn't go down stairs fast enough or I would drag my foot when walking. So I don't know about dealing with my own future children when I have MS, I just had to deal with asshole students making fun of me in my already awkward time of life and plus MS.
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They taught us to say "I have MS but MS doesn't have me." That was in the beginning but now it has been insideous and takes advantage of any health difficulty.
It sucks
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I know how u feel!! I to got goods days where I'm happy! I got days where I'm sad!! I got ms! I was told on April 7 2011!! I'm on copaxone!!! I too will never accept the fact I got ms
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i was dx in 1995, had a breakdown, lost my job and marriage, NO member of my family understood so i ran away, met up with my now wife, have 3 step daughters and 2 grandchildren, like is ok BUT i would not expect anybody to understand as nobody can possibly know what it is like apart from us ms'ers, on ldn and thats all, ms may be in your body but not in you. none of the neurologists, ms nurses, consultants, so how can they understand, how can there be one drug for all as every ms is different
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My bad and you to
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I feel you but god has something planed for me
HEY BABE IM UNDER DR ROG/TALBOT XXX
ms26babe 7 months ago
I'm in the process of getting a diagnosis of MS, just wanted to let you know this video is so wonderful and thank you for putting it out there.
hope your feeling a lot better.
ps... you have a beautiful family =)
lazydaisy1966 9 months ago
@lazydaisy1966
Thanks fr watching the video i really do hope and pray you dont have MS - this year started of bad for me- im slowly picking myself back up its hard but we have to keep fighting still think why me? im childish at times - have the odd cry now and then i have lots of loving people around me so takes my mind off things but the minute im home in bed i cant even sleep thinking about they may have got it wrong...anyway thanks for watching and keep watching my videosxxxxx
ms26babe 9 months ago
Thanks xxx have been on tysabri for 9 months - dont feel any different as yet - thats because i keep getting the cold and just recovered from sinusitis xxx remember me in your prayers
ms26babe 1 year ago
I Love This Video.. Im 20 Years Of Age And Was Diagnosed With MS A Little Over A Week Ago.. My Whole Life Has Turned Upside Down.. My Family And Friends Are Very Supportive And Keep Telling Me Things Are Going To Be Ok And My Life Will Get Better.. I Just Keep Smiling And Say Im Ok But Really Im Not The Pain I Go Through Everyday Is A Struggle, I Stuggle To Get Out Of The Bed, Some Days I Just Cant.. 5 Days A Week I Feel Drunk But Really Im Sober.. I Will Not Accept That I Have Ms Either..
littleange100 1 year ago
@littleange100 I am so sorry to hear about your diagnosis your so young and it isn't fair I always say 'why is it the good people' I have two children and I have to be strong for them this year gas been really bad for 'me I have just gone back to work after 5 weeks off I can't out of bed and the pain is unbearable I split up with him last year which was bad I'm always here if you need a chat,rant or anything even advice xxx and that's to anyone xx
ms26babe 1 year ago