It helps to know someone understands what you're going through after a spinal cord or brain injury. Learn more about the Peer Support program through the Marcus Community Bridge program at Shepherd Center.
I had trouble with bedsores, which resulted in plastic surgery and several months in bed, in the hospital and at home. I'm on a lifetime of painkillers which don't kill pain, and a lifetime of antibiotics, trading UTIs for nausea and vomiting and malnourishment. I have no hope, nor any message of hope, excepting only this: that I will die eventually, and will never again have to hear a person ask, "How ya feelin'?"
I have since had 2 surgeries to repair a broken hip & femur, countless staph infections, and I lost a kidney, which apparently had just "up and died" as the doctor said. I have spent thousands of hours in prayer; most of late has been for my own quick death, which I know I won't get by natural means. I hate myself. I hate life. Could I go back 13 years, I'd have bought a shotgun and blown my skull.
Just because you are paralyzed, it doesn't mean you can't still lead a long and meaningless life.
..then there is probably no better facility or faculty in whose hands you'd be any better off; my Shepherd experience was a 7-week "boot camp" to prepare me for a lifetime of crippledom. That being said, at the end of it, you go out into the world to find that, despite the learning, despite the support you had inside, once back on the outside, you are a crippled freak. I moved to Hawai'i to get away from the world; what I found was that the world is still here, just not the healthcare I need...
As a Shepherd Alumni (1998), I will say that waking up in a spinal cord injury at 16 and being told that after 10 hours of surgery you are never going walk again, a part of who you are dies right there on the spot.
To take nothing away from the excellence and diligence of the surgeons, the nurses & techs, the PT and OT, and the numerous others who put in their time to give these poor souls a chance at a "normal life," after a complete SCI, there IS NO normal life. If you have to go to Shepherd,
I had trouble with bedsores, which resulted in plastic surgery and several months in bed, in the hospital and at home. I'm on a lifetime of painkillers which don't kill pain, and a lifetime of antibiotics, trading UTIs for nausea and vomiting and malnourishment. I have no hope, nor any message of hope, excepting only this: that I will die eventually, and will never again have to hear a person ask, "How ya feelin'?"
Thanks anyway, Shepherd Center.
Put that in your pipe.
Jeff Cannon (10/98)
kludgeon 2 months ago
I have since had 2 surgeries to repair a broken hip & femur, countless staph infections, and I lost a kidney, which apparently had just "up and died" as the doctor said. I have spent thousands of hours in prayer; most of late has been for my own quick death, which I know I won't get by natural means. I hate myself. I hate life. Could I go back 13 years, I'd have bought a shotgun and blown my skull.
Just because you are paralyzed, it doesn't mean you can't still lead a long and meaningless life.
kludgeon 2 months ago
..then there is probably no better facility or faculty in whose hands you'd be any better off; my Shepherd experience was a 7-week "boot camp" to prepare me for a lifetime of crippledom. That being said, at the end of it, you go out into the world to find that, despite the learning, despite the support you had inside, once back on the outside, you are a crippled freak. I moved to Hawai'i to get away from the world; what I found was that the world is still here, just not the healthcare I need...
kludgeon 2 months ago
As a Shepherd Alumni (1998), I will say that waking up in a spinal cord injury at 16 and being told that after 10 hours of surgery you are never going walk again, a part of who you are dies right there on the spot.
To take nothing away from the excellence and diligence of the surgeons, the nurses & techs, the PT and OT, and the numerous others who put in their time to give these poor souls a chance at a "normal life," after a complete SCI, there IS NO normal life. If you have to go to Shepherd,
kludgeon 2 months ago