getting into walker

Bonnie is 4.75 years old with arthrogryposis. She just finally learned to get into her walker independently. She can get into it from bed or a chair, but this is the third time she did it from the ground.

Category:

Education

Tags:

• arthrogryposis
• amc
• disability
• g-tube
• Bonnie

[beverlyhansetburch]

Thank you!

[beverlyhansetburch]

Thank you! I need to film her again as she is now using not just two walking sticks(forearm crutches but she HATES the word crutch) but rather a cane and a walking stick. At Shriners she is practicing just with one cane! and sometimes two canes! I am SO excited. She is quite driven. I love her so much she works so hard!

[beverlyhansetburch]

Her chromosomes are normal. Now, they are always studying the human genome more and more. So maybe she'll have testing before having kids.

Anyway, I know many people with arthrogryposis that have kids that are not affected. Almost all are not affected. There are a handful of genetic ones.

Would you please share with us what university you got your genetic training at? I am quite curious.

[beverlyhansetburch]

Are you a geneticist? As ACTUALLY her form of arthrogryposis is caused by my having two uteruses. My eldest son was in one. He is fine. Second son was born early as he was at lower end of both. He is fine. Third son was in other. Her, she was in BOTH. We lost her triplet sisters but she survived.

She didn't have room in utero to move due to her position. I found this out at 23 weeks 5 days pregnant. We then made sure she didn't have anything else via amnio. She didn't.

[beverlyhansetburch]

Hey, someone remind me to block that person. I would do it now but I am hoping 'it' will read what I had to say. I am quite angry and don't need to deal with *insert bad words/karmas here*

[beverlyhansetburch]

Actually your mental issue must be genetic. NO it is not genetic. And for your information, my 23 year old son, 22 year old son, 20 year old son... all fine, including my 2 week old grandson.

My daughter's type of arthrogryposis is NOT genetic. Nice way to jump to conclusions. I have some fine words but you are not worthy of even them!

[JustCand]

geat job

candace hearrell

[VivalaaMacBeauty]

You go bonnie she is so cute

[SunandMarius]

Your Bonnie is so great! I'm so sorry you have to contend with ignorant people who don't understand or even appreciate how wonderful your daughter is. I don't have AMC but I know a person with a similar disorder. I have nemaline myopathy, it's a form of muscular dystrophy. I'm glad you share your videos with all of us! <3

[Buffheart]

She seems very independent for her age.

[ilovetoosingg]

She's adorable (:

[krisj1042]

I love this one bev.. I love even more of the fact that she is so stubborn and didn't want to back for the pony ribbon lol..she's so funny