There are good days and bad ones...

I may not keep this video up for long, but this is the reality of POTS (Postural Orthostatic Tachycardia Syndrome). It is not always this difficult, but it is certainly not always easy either. I was having a horrible day today, physically and emotionally, and i kind of broke down.

Category:

People & Blogs

Tags:

• dysautonomia
• lyme
• disease
• POTS
• postural
• orthostatic
• tachycardia
• syndrome
• CFS
• chronic
• condition
• invisible
• illness
• radlikemad

[sherriblueberri]

I can't tell you how much this helped me today. I know this was done a while ago, but I wanted to let you know that you helped me not feel so alone today. I'm having one of those "stay in bed and cry it all out" days. *sigh*

[radlikemad]

@sherriblueberri i'm so sorry you were having a bad day. know that you're never alone! so glad this video helped <3

[MrsMemster]

I watch this video when I feel "POTSy" and it helps me to know that I am not alone in my frustrations. Thank you for showing your true emotions and sharing.

[radlikemad]

@MrsMemster thank means so much to me. thank you <3

[belladiver612]

I dont think you should take this video down! It shows how we feel sometimes, and I know how it feels to feel alone, and sometimes we need to just cry. I think this video is true and real and I dont like the fact you feel this way, but I like the fact you arent afraid to let people know ITS HARD to deal with POTS

[radlikemad]

@belladiver612 thank you :)

[BigCarrieD]

You said every word that I have ever wanted to say. Thank you so much for saying them. Find me on FB please b/c sometimes I swear I feel like the only one on the planet with this disease (yet I know it spreading like wild fire). Carrie Freedom Gimbel Dillon.

[BigCarrieD]

I've been having a crappy 6 months b/c I've been so week since last spring, just hoping that I'd pop out and just get better. I'm 35 watching my life go by, watching my friends go out...and no one gets it...no one...ur video is the only one that seems to get it...I just wanna get a blanket and sleep over...LOL

[drpwiddy]

I had a 'bad day', so I know exactly what you mean. I hope that I can encourage you by saying two things: 1) Things will improve. I know I have and Mayo decided not to give me any medication. 2) I am in college right now (struggling some days to keep my head up, but willpower can propel you far) studying to go into medicine. Hopefully, I'll make it to medschool, so there is someone who gets being sick in the medical profession. I wish you well on your journey towards recovery.

[lgvmd]

Fuck?

[lgvmd]

Wanna fyck?

[Betterton2007]

I know you posted this video awhile back but it really helped me tonight. It is Friday night and I am home alone while all of my friends are out, so watching your video really really helped me not feel so alone. Btw, I completely understand how you were feeling because I have lyme dis-ease and I have alot of days that I do not have the energy or will power to do anything. You are not alone either. I hope you are feeling better today! So, thanks for posting this video!!!

[rapreborn]

You are in my prayer, dear angel.

[whitcarm27]

I have fibromyalgia and pots too. I went through many years being told i was making it up/ a hypochondriac, "it was in my head". My Doctors couldn't figure it out, but eventually I found a great doctor. I have been sick for four years and recently found out I had pots. It's really hard sometimes and I do feel the same way that you do. But we all will make it through this. Good luck.