JEAN-DOMINIQUE BAUBY Unter Hausarrest

Locked-in Syndrom Schmetterling und Taucherglocke

Category:

Film & Animation

Tags:

• Bauby

[LISeVBerlin]

Sometimes you have a total locked-in syndrom. Then nothing can be moved. The patient locks like a death person. But usually the eyes can be moved. Your given explanation is about right. Only motor paralysis is involved, never sensory paralysis.

You fell everything, but you can not move and talk. Like in a nightmare ...

Sorry for the delay

Karl-Heinz Pantke

[leomatosuk]

is this his real footage??? i dont speak neither german or french thanks

[LISeVBerlin]

@leomatosuk

Yes, this is Jean-Dominique Bauby. To my know ledge the only video-document, which exists.

Karl-Heinz Pantke

[larkfeathers]

is this actually the author of the diving bell and the butterfly?

[LISeVBerlin]

Yes, this is the author of the diving bell and the butterfly.

k h p

[DanielTheWalrus]

i don't want to sound obvious, cliche and hipocrate, but that man' tragedy makes us seen our lifes from a totally differente point of view. Makes all of us enjoy our lifes in a much bigger way.

[NUIBUIC]

His book made me stronger

[Suuneschiin1]

danke für diesen film (:



[AlejandroMunez]

@LISeVBerlin

Since you've had locked-in syndrom yourself, can you briefly describe what kind of feelings and emotions were you having during the syndrom? I don't mean your own memory, but basic human feelings (satisfaction,chaos,stress,pai­n). Does it make you feel uncomfortable, stressed .... , are all of the emotions that we "normally" feel of the same strengh & intensity as in locked-in syndrom? Have you ever felt feelings of massive rage, agression, feelings of wanting to cry & destroy?

[HoicnelixRex]

OMG! He wrote a book letter by letter just bliking his eye?! O_O

I must have to read that book.

[DavidDelGato]

@TroyOi The neural pathway between the brain and eyes is directly between them, and is entirely separate from the neural pathway that goes between the brain/brainstem/body.

[TroyOi]

@siukong Thanks for that. It's fascinating, when you think about it, that people in that condition retain just enough sensory, motor and autonomous pathways to have their vital organs continue to function, allow them to be fully aware of the world around them, and even, albeit in the most rudimentary manner, communicate.

[siukong]

@TroyOi I don't know the actual way locked-in syndrome works, but all the things he could do (see, move eyes around, move the neck/tongue, hearing, smell) are all provided by one or more of the 12 pairs of cranial nerves, which come out of the brain/brain stem rather than branching off the spinal cord. I'm not sure what level of somatosensory ability he had, but it was probably restricted to the face and some internal organs (facial nerve and vagus nerve).

[TroyOi]

Is it always (or usually) the case that a person with locked-in syndrome can still move his or her eyes and eyelids? Why is that? Is there something unique about the neural pathway between the brain and the eyes? Does it bypass some point that all the other motor pathways take? And, by the way, does this syndrome only involve motor paralysis, or is there sensory paralysis as well?

[TroyOi]

@alexanderkaplan I'm not sure what the actual facts are, but Wikipedia says he died March 9m 1997, 2 days AFTER publication. At the end of The Diving Bell and the Butterfly, they claim that he died a full TEN days after publication. Clearly someone's wrong. Perhaps the publication date referred to in the movie is a pre-publication release to selected critics. (It could be a bit of artistic liberty, but at the movie's end, his friend is reading to him critics' reviews of his book.)

[JimonesimaLady]

That material is incredible, I wanna read the book now!