Original Clip of Trevor's Spasms
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Uploader Comments (tanzie213)
All Comments (17)
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poor child god bless him
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What caused Travor's IS's?
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How's the little cutie? it breaks my heart to see babies going through seizures and not being able to vocalize it after, He is beaaaautiful!!!! I'd like to hear how he's doing now, my thoughts are with you and your family!
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That is a sezuire. I watched a video of a man who did that, and he would often drop whatever was in his hands. My best advice is to go see a physican.
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I am giving a talk about seizures to pediatric residents next week. Could I show them your video for teaching purposes? Thanks.
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My little one is having shakes when falling asleep.. not like this, but I've been worried so I've been looking things up online. This video made me cry a little, I feel so bad for him. I pray you get some answers on what this might be!
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Searching the web just makes me more nerveous.....My little babygirl makes those same movements....I'm worried, A LOT !!!
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omg thats horrible
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It took 2 1/2 years of testing but we finally learned that Trevor has an extremely rare brain malformation called Grey Matter Heterotopia.
tanzie213 1 year ago
Hey Laura...Trevy is a big boy now at 3 years old! For his diagnosis...he's doing very good. Depending on how interested you are...you can read more at happy being trevy dot com
tanzie213 1 year ago
Thank you SO much for the compliment!
Trev really is beautiful...and he's continuing to make strides. We feel very blessed!
All the best to your nephew & family...it's nice that they have you as a support!
...danielle
tanzie213 3 years ago
His seizures are currently in remission. ACTH worked for Trev...altho it does not for all babies...so please leave the name & info you're referring to for other moms & dads.
Thanks!
tanzie213 3 years ago