The Fight to Keep Genetic Information Private

Complete video at: http://fora.tv/2008/07/15/Creative_Disruptions_David_Ewing_Duncan

David Ewing Duncan, co-host of NPR's "Biotech Nation," discusses GINA - the Genetic Information Non-Descrimination Act - and other efforts resulting from concerns over public access to personal genetic information.

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David Ewing Duncan discusses Creative Disruptions as a part of The Ethical Frontiers of Science during the 2008 Chautauqua Institution morning lecture series.

David Ewing Duncan is an award-winning, best-selling author of six books and numerous essays, articles and short stories, and a television, radio and film producer and correspondent. He is the co-host of NPR's Biotech Nation. Duncan's most recent book is Masterminds: Genius, DNA and the Quest to Rewrite Life (Harper Perennial), previously titled The Geneticist Who Played Hoops with My DNA and other masterminds from the frontiers of biotech (William Morrow/HarperCollins). His last book was the international bestseller Calendar: Humanity's Epic Struggle to Determine a True and Accurate Year (Harper-Collins/Avon), published in 19 languages, and a bestseller in 14 countries. He is currently at work on Healing Touch: From Shaman's Magic to Digital People, One Man's Intimate Examination.

David is a Contributing Editor to Wired, and Discover, and a science columnist for the San Francisco Chronicle, a commentator for NPR's Morning Edition and co-host of BioTech Nation on NPR. He has been a special correspondent and producer for ABC's Nightline and 20/20, and a producer for Discovery Television. He is a correspondent for NOVA's ScienceNow!. He is a regular contributor to National Geographic, Fortune and MIT Technology Review, and was a longtime correspondent for Life. He also writes for Harper's, Atlantic Monthly, Smithsonian, Outside, The Telegraph, The Guardian, The Washington Post Book World, and The New York Times, among others. He contributes to the Dialogues column for Discover.

Category:

News & Politics

Tags:

• genes
• gina
• dna
• access
• privacy
• laws
• illegal
• spying
• screening
• discrimination
• government
• employers
• gattaca
• genetics
• foratv
• fora.tv
• fora
• tv

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@simplybornhuman

The harm principle. I totally agree with you.

[types10000]

@simplybornhuman

- yeh like smoking pot in the privacy of your own home, oh wait that's right....

[matthewcharder]

Wow. I scrolled down to find more comments and this is unbelievable. You are simply MAD! Or just persistently sarcastic. I hope the latter.

[matthewcharder]

You are being sarcastic...right? I hope so.

[earthbenderzore15]

well at least were starting to learn that we can change our genetics,thats one good news

[simplybornhuman]

I strongly disagree with forced sterilizations, reasons: because it may cause permanent harm, or even a change after the procedure. Only advocate forced abortions, and the rest is positive eugenics.

The manner in which they would be monitored, is simple and private.

If people do not believe in abortions, their other option would be temporal sterilization, until they are able, if they are genetically well too. One or the other, it's their option, but a choice between the two is compulsory.

[simplybornhuman]

People have a right to do whatever they want, but NOT when it effects the lives of others. In this case, the child and the public are also immensly effected too. When all bad could easily and rightfully be averted, it should be averted.

[brad213]

Everyone has the right to be able to have a child.That would never happen its ridiculous

You may be a candidate think about it.

[ArcaneKarma]

Theyre just afraid of eugenics. You sound like a nutball to them.

People who want IVF will get it if they can pay for it. The masses will catch on to eugenics and demand the right to good genes. Thats when well have the zeitgeist youre looking for.

[simplybornhuman]

Interesting how people rate my comment down, they must love their precious defects. whoever thumbs down my comment, must enjoy getting cancer, when all could have been harmlessly and easily averted.