steven johnson syndrome
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I AM PRAYING FOR YOU LOVE. REMEMBER GOD LOVES YOU WHEN NO ONE ELSE LOVES YOU, EVEN WHEN THAT SOMEBODY IS YOU. KEEP GOD FIRST IN EVERYTHING YOU DO, AND EVERYTHING ELSE WILL FALL INTO PLACE. YOU WILL HAVE A GREAT TESTIMONY. GOD BLESS.
MrVokalyst 1 year ago
I understand you have to know this changed your life and it is very hard to except this I know it happened to me do not be so hard on yourself and your love one's it is very scary for you and your family people are still afaid to touch me realize they do not mean this people get scared , maybe you should make new friends to you seem to be a very nice person .
2549SHELLY 1 year ago
good for you because you survive :)
my brother did not survive at all :( it seems that his skin is melting until became dry and became melt-like again. :( and after some weeks he's recovering from this freakin' illness but the problem is his heart collapsed . :(
12invulnerable 1 year ago
gGURL...WHO IS SNORING IN THE BACKROUND/ LOLOLO...IMMA NEED U TO MUTE THAT..LOLOL
nekobrown88 1 year ago
@yakko548 God and Jesus love you and I love you too! God bless all of you!
ALLIED7621 1 year ago
@cinex44 I took dilantin to an thats how i got it im only 12 though.
Most of the doctors didnt even know what happpened.They said it looked liked as if i walk into an open fire. I only really have one friend who supports me.
yakko548 1 year ago
my mom has an SJS.. she has it after taking a Dilantin drug.. just want to ask what medication your doctor gave you.. i'm really researching everything about SJS.. can any one tell me? tanx in advance..
cinex44 1 year ago
Rachel,
I have a friend who recovered from SJS, and saw first-hand the devastating effects of the illness. I regret that you had to suffer as you have. Please take care of yourself and know that people do care.
nalla320 2 years ago
Hello Rachel,
I'm a SJS survivor just like you.
I went through the same feelings that you went about this ill and its side effects. I know that some times it is almost unbearable...
But here we are. Alive.
I'd like to ask you about the recovery of your skin. Which type of treatment are you being subjected. My skin got very depigmented after disease and I'd like you to share your knowledge about this subject.
Thanks a lot and be strong.
dresser7241 2 years ago
Hello Rachel
I need to ask you this:
Do you still using medicines?, i kwon a person with SJS and i want to help her.
God bless you
ArceQ 2 years ago