Life with a Disability and Multiple Pterygium Syndrome Part 3

I'm baaaaaaack. This is an update video. The video is mainly about my very rare genetic disease, Multiple Pterygium Syndrome, and just life in general with a disability. If you know ANYONE with that disease, please contact me! I am looking for as much info as I can get to help with complications caused by the disease, such as with breathing and the webbed neck. Also, if you want to help by doing extra research and e-mailing me about different treatment options, I'd greatly appreciate it. The other parts of the video talk about life lately with doctor visits, graduating community college, and an update on friends and life in general. THANK YOU for those of you who have e-mailed and commented with sweet compliments and comments sticking up for me!!! It's greatly appreciated, and I mean that. Please watch all 6 parts to this video to get the full effect!!!

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[TheTank2287]

i am proud of you young lady i am disable myself



[sweetluvgurl]

@TheTank2287 Thanks a lot! :) What's your disability?

[piper4seeformerly]

Have you had this disease your entire life? The cool thing I've found with youtube is the prevalence of Haters has helped me depersonalize my reaction to them. Before, before I knew they were 'haters', I got offended but now I don't because they're just kids mostly.

[sweetluvgurl]

Yup.  It's a genetic disorder that I was born with. And yeah, I guess you're right. I've mostly noticed a lot of the haters are kids and teens.

[CRAZYPAL69]

I will pray for you ! God bless your heart!

[mattguff06]

i stubled across ur vids coz i hav eye pterygiums... u hav really pretty eyes! :) u hav so much guts n determination to post these vids! i think ur an awsum person and really inspirational! goodluck wid uni and everythin!

[PENALIMPLANT]

none of these cowards would be able to live one day like you do and they have no balls to begin with.

your speech is fine I understand every word you say. I think you need the relax stay calm. clear out all the negatives swirling inside your head. block out all the negatives. your health should be the number one focus. Wish I lived closer to you. I know it sucks feeling lonely is never easy we all need friends that care and cheer us up.

[mholt16689]

your damn right your inspirational you go girl! lol :)