Being Legally blind (Ocular Albinism) FAQs!!

Answering some frequently asked questions!
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casey

Category:

Entertainment

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• being
• legally
• blind
• ocular
• albinism
• nystagmus
• casey
• frequently
• asked
• questions
• vision
• can't
• see
• eyes

[dunstun365]

Do you have nystagmus as well?

[KCfan7989]

@dunstun365 Yes, I do.

[tealstar01]

Although I have been diagnosed as legally blind five years ago though not with the same condition as yours; I have never really looked up any videos about others on youtube.

I have to say though that your video’s are great.

I have a question for you though. With school do people seem to treat you differently? Also how do you tell teachers about your problem? I have tried, but they seem to forget constantly and I hate to keep reminding them. So do you have any suggestions on that?

[KCfan7989]

@tealstar01 Thank you so much for the nice comment! I elaberate on all of this in my "being legally blind-school) video. As for telling teachers, they used to foregt with me sometimes too, but you need to get an individual education plan (IEP) to help you. :D

[tealstar01]

@KCfan7989 Your welcome.

But yes I had an IEP and they still never remembered and every time I would remind them they would get so irritated and the guidance counselor messed up so much and just kept telling me it was my fault. So I had spent my senior year in a homeschool program. But, not that I am starting college they don't follow an IEP anymore and the disability coordinator never really deals with visually impaired students so I was just wondering what you did when teachers forgot. ss

[KCfan7989]

@tealstar01 I'm entering college too, and the disability office has been wonderful. They gave me a sheet of paper with all of my accomidations to give to every teacher. When they forget, I would just kindly remind them, and if they won't do it you may need to get disability services involved becuase it's our right by law to have that service. :D

[nikkirae83]

You seem to have a very positive outlook on life reguardless of your limitations. That's very important. I am a blind blogger and love to find people like you to blog about. So many sighted as well as blind people pigeon hole the blind community and it's people like you that break through the barriers. I hope you will check it out playingtheblindcard.blogspot.c­om

[jjovereats]

Kc, do you have what I'd consider normal depth perception for your vision level (can make out whether a cube is 3d or just a trick) or are you very, very blind?

[Mundo1987ps3]

Im going trew wat u going trew I wish I could meet some one like u ur so strong about it congratulation stay strong

[jjovereats]

@KCfan7989 do you need a cane or can you see where to go w/o

[andreaxx6]

I commented on your original video about ocular albinism, and in this video you mentioned dizziness spells. I have had those for years and I have ocular albinism as well, and we always wondered if it was related to my vision.... Well, they're not totally sure about what exactly caused it, but I recently found out I'm anemic, and being on iron supplements has helped the dizziness. I think it'd be something to look into if you're still experiencing dizzy spells. Hope things are well! Andrea

[rboesen1970]

Casey... great video. Sounds like we have had similar experience though about 20 years apart. When I started getting involved in sports in 7th grade, I started to really come out of my shy-shell. Getting a cane is a great idea. If you don't think you need it, you can always throw it in your bag or whatever. But, if you find yourself in certain need of quick assistance, it will always be there.

[black4ever018]

Regina Spektor.... YES!!!

[tealstar01]

@KCfan7989 I am not sure what college you are attending, but that sounds alot better than mine.

But, thank you for that info about the disability services because I may have to contact them. The college isn't helping me with the computers in the class room and not allowing me to use my own.