A Family Experience of Spina Bifida

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Uploaded by on Sep 28, 2009

The Mavroudis family talk about their experience of having their son diagnosed with Spina Bifida

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Nonprofits & Activism

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  • I am a Middle-aged man with Spina Bifida who uses a wheelchair..I feel I have been very lucky with my life.The great thing is that there has never been a better time in History to be Disabled.I have great confidence that this childs generation will achieve full equality. The very best of wishes for the future.

  • My daughter has Spina Bifida with a VP Shunt and like most we didnt know much about it. She today, is a healthy beautiful 2 year old <3 We wouldnt change her for the world. I hope she can have the great attitudes that a lot of people we have come across with SB.

  • im 15 a sophmore in highschool and i have spina bifida but im lucky i dont need a shunt. and i also walk but not straight but i dont use a wheelchair

  • Hi I am 32 years old i was born with Spina Bifida & Lipoma Lumbar ,I still have nt got any problem while walking but I have not much sense some times my toe mails get hurt but i cant feel it cause me to much problem and take quite while to get heel thats why I take extra care .HOPE YOU FEEL BETTER TAKE CARE

  • my best friends daughter just died a day ago at the age of 14. she had spina bifida and never learned to walk or talk. she also had hydrocephalus and a shunt. the shunt got completely infected a few moths ago and they had to reroute it and it was a major mess. she's been in hospital for months. unfortunately she never really recuperated and died. it's a fucking shame!!! R.I.P Anna

  • a classmate of mine had a child with spina bifida, he was treated even before he was born.

  • I am 16 and a junior in high school and I also have spina bifida and a shunt so I know what it's like

  • My Nice had Spina Bifida (13\3\02) i was a kid when she was born ,she was in the hospital for weeks and she died the following month when she was born :( Rip Chloe

  • see i love watching these things because i have spina bifida and to all kids with spina bifida keep fighting and u can defeat the odds

  • my son went through this same thing. he had spina bifida and hydrochephalus and was operated on within 12 hours of birth. he spent 3 weeks in the hospital because of a shunt malfunction. i found out he had sb when i was 4 months pregnant. i went through this all by myself as a single mom. my son just turned 1. he is simply amazing!

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