Things have to change by Linda Crowhurst
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7:28
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God bless you Greg and Linda - I do pray that your unswerving commitment will see results; and soon - this has been going on far too long already. Love Nigel
ivortick 3 years ago
Thank you yet again Linda!
There are tests they can do - and yet the NICE guidelines have limited the possibility of us getting them ever further...
Also - I asked my GP if I could be referred back to a neurologist (it's been 12 years since this last happened) and was told that I could only go to the service that provides psycho-social treatments...
Things have got worse not better in the last 12 years.
Love to you and greg,
xxx
deadgirldreaming 3 years ago
Thanks, Linda.
My current doctor asked me if my illness could just be panic attacks. I was so upset that after all these years, I'm still being asked these kinds of questions. It's disheartening and depressing. I don't know how to make them understand that we are physically ill and not mentally ill. They ignore physical evidence. I had brought in my blood pressure readings, which were in the 80's, super low. They just ignore it.
Carrigon 3 years ago
I totally forgot it was ME awareness week - because no one else was 'aware' to remind me to be 'aware'!
Where are the ME charities such as AFME/AYME? Meddling with CBT/GE, that's where. No use at all to ME patients.
You took the trouble to make this video and talk about what we all feel and dream of which is great.
The ME dream:
-------------
Equality in research and funding into ME.
Equality in NHS care.
Equality in community care.
Equality in recognition of our suffering.
X
luminescentfeeling 3 years ago