Becki's Story - Stevens Johnson Syndrome- sjs/tens

The Story of one Stevens Johnson Syndrome...what she has gone through and continues to go through is nothing short of a living hell...This video was made to bring attention to this dreaded Syndrome so that others who may suffer from it may find hope. And so that the general public is made aware...

Category:

Education

Tags:

• SJS
• Stevens Johnson Syndrome
• TENS
• toxic epidermal necrolysis
• sjs
• tens Becki's Story

[midlantic1]

May God bless you with health

[SJSsurvivor]

@midlantic1 Thank you

[TheMusicMan29]

God bless you, Becki.

[SJSsurvivor]

@TheMusicMan29 Thank you

[ChandaxxJohnson]

I am a SJS TEN survivor as well. I was hospitalized 5 months ago and feel like I've gone through hell and back. I am thankful to be alive but feel like I am only half living because I am still suffering with cronic fatigue and severe photophobia. I would love to know if anyone who had SJS has recovered fully from photophobia. I would hate to have to live with this condition for the rest of my life. Please help with any information or advice. Thank you.

[shikita007]

my baby sister story is the same... she too is partial blind and has to have multiple surgeries to fix it... i wish no one would have to go through what Ravyn and Becki went through

[ASTRAALLEN]

Bless your heart. I take that stuff. There's a trick to it. But had I seen this video years ago, before I started taking it, I would probably not have. I can't IMAGINE what that must have been like. God bless you. Big hugs.

[entyce66]

this is what lamictal did to you? wow!!! stay strong you r very strong u r def. a survivor

[SJSsurvivor]

@pook880 Have you gone to Boston Foundation for Sight in MA? I believe 98% of the people that go to BFS have a positive outcome. Look into it so you may feel the comfort that so many other SJS survivors have found. Good luck to you

[SJSsurvivor]

@menacetohord, You need to do a little research before you open your mouth and disrespect others that have had their lives changed or even taken by SJS/TEN. KARMA is my friend, is all I have to say! I just hope you never have to experience this. You will be surely eating your words then.

[SJSsurvivor]

@PeaceLuva882 I am so happy you have no long term issues because of SJS/TEN. I also had TEN. I still have not returned to the hospital that saved my life. One day, I will. I am not sure how I will react as I was blind when I was there and when I left. I never seen a face. Just smell of burnt flesh and the helicopter that would take flight quite often, as the heli pad was just out my window. I have high anxiety when I hear the drug commercials on the tv. Good luck to you! <3

[SJSsurvivor]

@Palmi2012 My heart goes out to your mom as well as your father and you.  I am sure it is not easy at that age either. <3