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Monica's Parent's Reactions to Monica's Diagnosis

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Uploaded by on Apr 30, 2009

http://lyme.jimdo.com/

Monica's parents discuss their reactions to Monica's diagnosis, as well as how it has affected them.

Category:

Education

License:

Standard YouTube License

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  • Thanks for this!

  • Montica:

    Did the antibodics work?? Please post.

  • ContinuedMonica A - You're fortunate to have your family helping you. You are so pretty and you don't look sick. But your family knows better. They know how much you struggle to accomplish things. I was thinking maybe I should email this Youtube video to my family and close friends so that they can hear how concerned your parents are for you. Then maybe they'll realize how neglectful they've been. But I probably won't. That would be mean for me to do. I'm bitter but not mean...Continued...

  • Continued..She'll ask me how I'm doing over the phone, but this time she didn't even ask about my progress much less if she could come to my house and help me for a day. (she does't work, and lives 45 minutes away) Maybe if my disease was called Cancer or Aids, I'd be offered help by family and friends. My husband does SO much, he deserves his clothes folded and put away and his bathroom cleaned. I don't even know how to ask for help. At this point It's too messy and embarrasing to show anyone.

  • ContinuedMy upstairs bathrooms are disgusting. I can only keep up with my guest bathroom and sruggle to clean my main floor enough just to have family come over. And when they came over last, they heard me pukeing as I often do from abx.. I cleaned myself up and told them I was fine, put on a smile and carried on as if I was fine. My sister-in-law sat as I washed the dishes and cleaned the kitchen. I guess I just don't look sick enough. Continued...

  • ContinuedNobody knows how sick I am and how little help I am to my children and my husband. They don't know how we struggle to provide for our kids. With grocery shopping, cooked meals, clean clothes to wear and accomodate their participation in sports. When people see me, it's on a GOOD day. They don't see me struggle. So they don't ask if they can help. Not even relatives. I have 12 loads of clean laundry on my office and bedroom floor that has been rotating since October 08. Cont...

  • ContinuedNobody knows how sick I am and how little help I am to my children and my husband. They don't know how we struggle to provide for our kids. With grocery shopping, cooked meals, clean clothes to wear and accomodate their participation in sports. When people see me, it's on a GOOD day. They don't see me struggle. So they don't ask if they can help. Not even relatives. I have 12 loads of clean laundry on my office and bedroom floor that has been rotating since October 08. Cont...

  • continued...Finally one of my very caring childcare clients got educated of my needs. She was the only one who stepped in and helped to find me a Lyme doctor but no insurance accepted. I've been on 3 different abx from October until now...June 09. Still have Lyme. Monica - you have parents who are taking care of you. I'm happy for you. I don't have parents, but I have my husband. He does so much to take care of me and our kids. Nobody knows how much he does to hold our family together. Cont

  • Continue...My husbnd culdn't undrstand what I was researching, why I wsn't finding a doctor. Was reading a lot...docs aren't educated in Lyme and the few docs who ARE do not accept insurance. Again my mind had become mush...my thinking was very slow, but determined to make ONLY an EDUCATED decision. Was scared to seek out the wrong doctor. I was taking too long..3 weeks!

  • continued...vaca was spent fatigued with headache but not as bad as before. Came home and the headace got much worse with cont. fatigue. PCP gave me 2 more weeks of abx, with 9 refills. I think he didn't want to deal with me anymore. I couldn't work any more. I was a home daycare provider. I couldn't even cook or take care of my own kids. I stayed home and scoured the internet for answers. My mind was MUSH. I couldn't make a single dicision for myself. Cont...

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