Postural Orthostatic Tachycardia Syndrome

A slide show and video going over the basics of P.O.T.S., some things that help and advice for those that suffer from it and those that know people who do.

Category:

People & Blogs

Tags:

• Postural
• Orthostatic
• Tachycardia
• Syndrome
• P.O.T.S
• EDS
• EDFN
• Ehlers
• Danlos

[dahaha1415]

@JodiePixie1991 I have POTS as awell I've had it for a year and 4 months and It took them a year and 4 Months to diagnosis me! I have a blog Ciarashealingjourney.webs.com, Please check it out if you want to talk about your POTS symptoms. I'm struggling to find a support group so im trying to make my own.

[acvrana]

Great Job you help me everyday to keep going:) but slow down the speed of the powerpoint so it is readable to others .Thanks for spreading the word to others and it has helped me because I am a college student with this condition. What is your contact info?

[lovinglivity]

You have such a strong spirit. Thank you for sharing your story and your love for your community. I have POTS and I'm just now getting so super amazed and rocked by how much info and stories are out there full of support. What helps me the most is focusing all my intentions on what I have to be grateful for in life. Even though there is so much I cannot do sometimes, there is still so much I can do, so much I have to share and soo much to live for.

[SuperMissblueeyes]

Thanks for sharing your story. I don't have POTS, but I have chronic fatigue, which restricts me a lot in what I can & can't do. It shares quite a number of the symptoms of POTS, although there's obviously a different cause. I understand what it's like to be so restricted. But I'm also a Christian & I'm glad you have God, friends & family supporting & encouraging you. I find it so helpful when I feel really rubbish physically & mentally (ie. trying to concentrate) to know I'm never alone.

[JodiePixie1991]

@avaandally heyy i have POTS i cried when i got my diagnosis too ive just been diagnosed this year but had it for 6years.. its great to know we are not alone in this xx

[JodiePixie1991]

hey i have POTS im starting to make video diaries on it... please take a look :) ive suffered for 6years but only just been diagnosed this year good vid hun xxx

[camwhorder]

turn the music down!

[rapreborn]

I love you.

[KaiSiJoAmos24]

I have E.D.S type 3 and I have been having symptoms of POTS for years, such as the fatigue, bowel issues and bouts of breathlessness and tachycardia..but only recently have I been passing out and getting really dizzy when I stand, I hate it when I wake up so fatigues when I haven't even done anything, and then when I get up out of bed, my heart races and I get out of breath and my vision goes weird, sometimes I pass out, i want some help. I'm starting UNI soon, I don't want to give it up !

[TheRockinmama]

omg im so glad my husband ran acroos ur video! i've been so sick & not myself 4 way over a month now. hospitalized twice withn a months period. my ekg's & blood pressure & pulse has been dangerously high/low! so tired & cant explain it. my cardiologist just keeps sayin i know there is something wrong with you i just cant pinpoint it. i'm so depressed & not myself. i went from been so active with my two daughters to not even being able to move.i'm still working but not sure 4 how long.