Jenny's Huntingtons Story

This is the story of a young lady (25) who lost her mother 9 years ago to Huntington's Disease. Jenny has found out that she has the effected gene for the disease, which means that she will begin showing symptoms in approximately 20 years. Jenny is very active in the Huntington's Foundation and is currently involved in a 'walk-a-thon' fundraiser. If you'd like to donate, please go to 'http://www.firstgiving.com/jennyrogers' Thank you

Category:

People & Blogs

Tags:

• Huntington's Disease
• fundraiser
• firstgiving.com
• Jenny Rogers

[GiGmartim]

people with HD in the family that are not affected and want to have children should do the children IN VITRO. so they don't born with possibility of having HD

[saigondaisy]

Any one who can say just get an abortion has know idea what its like to be told you have no right to live as i have just becouse my dad has the gene . Im here and have the right to live and even if that is going to be a short life im happy with it and happy to have live it . All people who get tested need our love and prayers and are very brave . Its not just some you should do just like that it could change you life for ever GOD BLESS YOU ALL

[MawieLove]

Such a touching video... I am sorry you and your family had to go trough that... I wish you all the best...

[kathvwhit]

I just wanted to say I am praying for you guys and I know how you feel. My monther had Huntington's Chorea. She died when I was 9. I remember having to deal with that and caring for her at such a young age. It is hard. I also worry that my sister and I will get it. I don't know anyone from my monthers family. All I do know is her mother passed away and my mom's sister passed away from it. I know it is tough but just keep you faith and you can deal with anything. God bless you!

[hannah7581]

Im going to have to go through this.. <\3

[MulattaPride]

I'm so sorry for your loss . This is soo sad, I'm in freaking tears, I had no idea about this disease thank you for informing us all about a disease so few know about. May God bless you .

[DragonDriver100]

God forgive me for complaining about my wrestless leg syndrome.

[ashleighbriar]

My brother has this. and it is possibly one of the worst. watching them deteriate everyday. from a teen who was moody. to a young adult who started having problems with walking. to now a 30 year old who is bed ridden who cant move.talk.walk and eat any solids. hes been hospitilized for 6 years and just waiting for him to be at ease. i sympathize with any family who goes through this ts not easy on any family. me 17 had to watch him get dissed when i was young. to now. all the best out there.

[mrsedgerson]

So sorry for your loss my husband family have that disease very bad I saw how it can affect people they had about 10 family member with the Huntington's Disease.

[ecocentricity1345]

I wish you well.

[miller6604]

only way to fix this, is to do it infetrio dna manipulation on the #4 chromosome. maybe in the far future we can fix it, but no cure ever.