Lymphatic Malformation What is it?

This video is about lymphatic malformations and what they are. Over the next however long I'm going to be posting videos about what its like living with one and what I'm doing to try and raise more awareness :)

The Music playing in the background is a band called Bad News Bears http://www.myspace.com/badnewsbearspa

Lymphatic awareness myspace: http://www.myspace.com/lmchawareness

Category:

Education

Tags:

• Lymphatic
• Malformation
• cystic
• Hygroma
• bad
• news
• bears
• James
• Cook
• University
• Hopsital
• myspace

[JerbiLou]

Thats awful-you shouldn't be discriminated against because of your age. I bet your a great mum to kasey!! I don't know of anybody who's been treated at the hospital in Birmingham but you could try contacting James Cook and some travel expenses may be paid for you if you need to.

[mumofkasey]

is your treatment working? awh thank u my girls are my world i have 2 my 1st pregnancy was straight foward kasey was my second! i went back to a different gp today who seemed abit more understanding but agreed not to rush to surgery because of nerve damage etc... thank you for messaging me back its nice to speak to some1 who nos 1st hand what im going through :)

[JerbiLou]

your EXTREMELY welcome! I know about how hard it was when I didn't have anyone but I've met a load of people on the internet and its alot easier :) Thats great news about the new GP and a great thing theyre not going to rush surgery. Add me on facebook if you have it-my name on there is Jessica Hopper

[mumofkasey]

hey jerbilou i have a daughter whose 13 months old she has a cystichygroma just under neath her jaw on the left side i am reallyworried afyter reading things on the net can u keep gettin more?did they find urs by ultrasound wen ur mum was [pregnant the docs keep sayin my daughters is so small it will resolve itsself i do not believe this! u are a really pretty girl and wot ur doin is incredible

[JerbiLou]

Hi :)

Of what I know it is possible to get more than one LM or CH. I didn't know that I had mine until I was 6/8 years old after I had a nasty fall off my bike. Doctors thought that it was fatty lumps however when they tried to operate they found that it was something more. At the age of 16 I then went back to medical treatment.I'm now at James Cook University recieving bleomycin injections. I don't believe that it will resolve itself.

[jomol22]

I have a 13wk baby girl with a large BM from the top of her ribs to her hip on the left hand side of her body,it goes round her back & covers 3/4's of it. Her left thigh,bum cheek, leg & foot are swollen as is her left cheek & ear. I'm so worried, no joy from local hospital & Newcastle are just wanting to moniter her wish makes me uneasy! Really dont know what to do. I've looked for information for weeks now. I think you are an inspiration to all mums! Any help or advise from you would be great!

[ricosalb]

Ur amazing:-)

[Clopez729]

You are an amazing beautiful young woman!!! I admire all you're doing to raise awareness for lymphatic malformations. My 5 year old daughter was diagnosed at age 2 with a vascular lymphatic malformation in her cheek. We are fortunate that her malformation is manageable with antibiotics and we only have to deal with periodic flareups. Best of luck to you!!

[DraconianSilenced]

Hey your a strong person I hope things are getting better for you :)

[alinitaag]

watch my video! i have lymphangioma on my face and i post a before and after =) its amazing

[LLLLL757]

i had cystic hygroma in my kneck when i was an infant i had surgery and now all thats left is a lump on my kneck and a scar that goes from the back of my kneck to my bellybutton im totaly fine now but i dont kno much abour it at all my parents dont like to talk about it so i jst research it on my own