Normal Life after MS diagnosis??

Responding to question about whether or not my life has gotten back to normal after my MS diagnosis and the start of MS related medication.

Category:

People & Blogs

Tags:

• multiple sclerosis
• MS
• living with MS
• MS medication
• MS outbreak vlog

[MSVlogSupport]

I was on Copaxone for a little over 4 years and would still be on it if I had insurance. Yes it does take time to build up in your system and get stronger the longer you are on it. After I was on it for awhile the stinging got much better or I just got use to it. Some people Ice the area before doing the shot so you may want to try it. Great video and good info.

Take care,

Andrea

[MyMSJourney]

@MSVlogSupport Releasing that small amount of air that's in the needle actually makes the world of difference for me. The burning isn't so bad and I don't get the hive, sort of raised skin effect after my injection. Thanks a bunch - Tamika

[christinedavi]

thanks for the update. Hope your summer is relapse free.

[MyMSJourney]

@christinedavi I'm praying for the same thing, thanks!

[gphx]

The Tysabri and CCSVI folks seem to be the ones posting the miraculous 'before' and 'after' vids. They post about getting up and running while the rest talk about relapses. =(

[MyMSJourney]

@gphx I'm still trying to wrap my head around CCSVI & my neurologist wasn't too fond of Tysabri and wanted to start with Copaxone first since I was newly diagnosed. Most days are good for me and I'm thankful for that at this point. We'll see how things go from here.

[popadopalus]

I think that you are beautiful and i would like to take you out, If you don't mind. feel free to call me at 347 389-2494 Sean.

[rvquilter83]

You are such a beautiful person and thank you for sharing. I was curious, I noticed the drapes are closed behind you. Does the light affect you that way. I use to be a nurse to a couple MS patients and they seemed to have trouble with the light. Please keep your videos coming, you have really helped me understand more. Thanks again.

[haiqin]

I know how you feel. I am taking Rebif, and I'm not sure if it's helping. I haven't had any attacks at all since the first one, and I wish I knew if the Rebif were responsible. I'd love to stop taking it. :)

I have horrible problems with heat, as well. I hope you learn how to adjust to that.

[gphx]

@MyMSJourney Glad you're doing not what's right, but what's right for YOU.

[MyMSJourney]

@123dietdrpepper Great advice!  Thank you :)

[123dietdrpepper]

I don't think one will ever be 100% like they used to be after being diagnosed with a disease such as MS. One may look normal but you have to work hard at taking extra special care of yourself, not letting yourself get run down, eating properly, exercising properly, taking medication, and undergoing more appts and tests to keep a watchful eye on your blood levels, etc. Good luck dear.