Kelli's 2 year update.wmv

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Uploaded by on Feb 26, 2010

An update on me & the M.S. over the last 2 years. and how I am more disabled now.

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People & Blogs

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Uploader Comments (kwazykelli)

  • Kelli, you are not in the least boring.  As for the bowel incontinence, I had that years ago and did a lot of reading to find what caused and helped it. Fiber. I tried the tablet that you buy at the store and they helped but, also cause a lot of gas. Now I eat a bit of shredded wheat style (actually frosted) and I never had the problem again. Thank you for sharing.

  • Will try the fiber thing, I get it mostly when I eat and then walk, so makes hard going out anywhere for dinner unless I take an immodium first!

  • Here on youtube you can see an interstim therapy to seeothers who have undergone the procedure. I had the surgery done in November which helps with bladder control.

  • I saw a urologist, and am actually looking into the interstim procedure, not for bladder incontinence, but for bladder retention. The incontinence is with the bowels, and FDA hasnt approved the procedure for that yet!

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All Comments (24)

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  • I am going to try Gilenya (Fingolimod). It was just released the other day. I was on Rebif and Copaxone... No difference in my MRI or symptoms.

    I am anxious to try Fingolimod.

  • Killi I am sorry to hear about that. It is good to see you...take care god bless

  • Love:-)

  • You poor lady....I really feel for you. I don't have MS but I have Ankylosing Spondylitis and Migraines and I get infusions and take lots of meds. I do feel like it ruins a lot of my life.  I will pray for you. Who knows why God has some of us go through certain trials and tribulations....we'll find out someday. God Bless!

  • Not boring at all and quite intelligent... You thank us for watching... I think You for sharing !

    Very informative and I appreciate learning from others who are actually living through such experiences rather than by speculating individuals.

    Thanks again and Bye bye...

    LeXx-integra

  • Kelli i am moved by your bravery to educate us through your videos. I have a great respect and a healthy dose of sympathy for those that have MS. The struggles you go through are a grim reality of how serious this condition can dibelitate a person. Thank you so much for these videos. I myself dont have MS. But feel touched by your videos.

  • "Walking like Frankenstein" - ha, good description, I've had that...

    Good to see you again. You wouldn't know, but your "what it's like" video really helped me in August 2007. I watched it the day of my diagnosis. So, thank you lots for that. Sorry you've been having a hard time of it since. Keep the videos coming please x

  • This is so sad :( and I am scared.

  • Dear Kelli,

    I had M.s. for 3 years or a little more I was on copaxone and I got tired of taking meds and shots so one day I went to the Lord in prayer and went boldly. When I ask for forgiveness I said LORD bye your strips we are held. And we recieve not cause we ask not. I have been in church 4 2 months and now I don't have m.s. anymore. Being bapitized to wash the rest of the sickness away. Please have faith and go to the LORD boldly and ask for your heeling. GOD BLESS!!!!! luv u

  • you r nt boring me .... i'm glad that u r doing bettar >>>dont ever give up... Wish you all the best

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