WHAT ABOUT ME? New Documentary about the illness M.E. (Myalgic encephalomyelitis

WHAT ABOUT ME?
90mins.
to be released late 2010.

People are suffering. But they are being told its all in the mind. Our aim is to investigate ME/CFS/PVFS (Myalgic Encephalopathy/Chronic Fatigue Syndrome/Post Viral Fatigue Syndrome) further, to put the plight of an ME sufferer in the public's consciousness and to encourage further research and health policy reform. We hope to spread the word through this website which will have videos and podcasts on ME, short virals on the ME situation delivered multi-platform, a TV documentary aimed at a prime-time audience, and a worldwide theatrical release.

Keep up to date with the film or get in touch with us on the official website:
http://www.whataboutme.biz

Category:

Science & Technology

Tags:

• film
• documentary
• 2010
• research
• science
• medical
• illness
• health
• suffering
• ME
• myalgic encephalomyelitis
• CFS
• Chronic Fatigue Syndrome
• chronic fatigue syndrome
• the state of me
• nasim marie jafry
• policy
• public
• consciousness
• television
• audience
• cinema
• theatrical

[tygetje]

Where can I find the rest of this doc and is the retrovirus xmrv in it ?

Living with this ilness for 13 years and the most hurtful is the disbelieve !

Living in Holland where the only treatment most people believe in like my doctor is cgt and get wich made me even more sick and even depressed from time to rime

[doubledmedocs]

@tygetje Hello! We are currently making the film, and yes we're talking about XMRV. If you want to share your story, you can join our vimeo community on vimeo.com/groups/whataboutme

[doubledmedocs]

Hi all! Thanks a lot for your support as usual! We also need your contribution, so don't hesitate to go visit our Vimeo account a post some videos. You just have to go visit vimeo.com/groups/whataboutme

We're really looking forward to your interactions :)

[gillfordable]

When and where do we find out when this documentary is to be aired?

I would hate to miss it...

[doubledmedocs]

@gillfordable it will be aired in 2012 :)

[ironbith]

yes this IS REAL! I have it and have had it for 10 yrs.

[doubledmedocs]

@ironbith We hope to represent you and thousands of others, we aim to make this count.

[lizjtoon]

Its all so very true, watch and believe and stop judging me i do try my hardest to do my best but it is never enough for you, so instead you judge and take my children away from me, what else is there for me once my life has been taken by illness and then by human nature, it is so lucky i'm one stubborn little lady, you will not stop me from living and loving to the best of my ability, I sure dont plan on giving up, i will fight my body, i will fight my mind and i will fight you! Never give up!

[Michaell17588]

In my opinion, CFS is caused by an excess of the vata dosha in the body. I am by no means a health professional. I'm just someone who has suffered with the symptoms of this horrible imbalance for almost 16 years now. I had tried pretty much everything, some of which made me worse before I discovered the truth in ayurveda. I believe that this illness can be overcome and one can lead a life full of abundant energy if he or she is willing to put the work in and live according to nature's laws.

[spacedreams2111]

18 years and counting...knackered every day, and unable to have a social life, or any kind of life, because of it.

[NaturallyAlyssa]

I've heard of M.E/CFS before and the symptoms sound just like POTS and Dysautonomia which is what I have. Is there any difference?

[PaithanNL]

Getting up, showering and clothing is exhausting. Severe pain almost every second of the day. Getting up every time you fall or when you are pushed on the floor. Thinking strong and hard working. Being chronic ill is like the result of running a marathon which you did not run. I sincerely can compare it with a sports competition. It's lonely, but your not on the top and you don't get a price.

CVS is not a mental illness!

Prof. dr. K. de Meirleir Thank you for you dedication to get us better.

[PaithanNL]

Had several therapy's in 14 years. Psychiatrist need just a few words to put a mental disease on you. Who would check them? It's their word against yours.

Had several bowel and food allergy tests. Not one showed a lactose intollerance.

Goverments , psychiatrist , physician and scientists isn't about time you take responsibility of your actions, results and diagnosis? How long you are going to cooperate with this MEdic maffia?

CVS is not a mental illness!

[AmyVanderlynn]

I am an sufferer for nearly three years now and since last week I have the finaly result of M.E. / CFS..I live in germany so its pretty hard to find ANY help here. This trailer brings a lot of tears in my eyes..I always had the hope to have any other disease than M.E. ..horrible..all the ignorance, the pain of your body and of course the mental pain..

[MsJude67]

Suggested Music Gary Numan M.E My daughter has ME and says it fits perfectly

And me i eat dust - we are so run down- I call it my death- but I'll only fade away - and I hate to fade alone- now its only M.E. - We were so sure- We were so wrong- now theres no one left to see- theres no one left to die- theres only M.E - Why should I care- Why should I try- Oh no/oh no - I turned off the pain- Like I turned off you all - theres only M.E

Not written about the illness But fits well!

[MsJude67]

my daughter has this. Is horrible - she is "fairly lucky" in that she has good days some times - but has lost her education as it struck when she was 14/15.

More publicity - these people are not workshy or lazy they are very very very ill.

I suggest using Gary Numans M.E. as a theme tune for this (his permission required) as the words fit

Me I east dust

Were all so run down

I call it my death

But I'll only fade away

and I hate to fade alone

Now theres only M.E

[spacedreams2111]

Thanks for posting this.

[TheFletch827]

@nz1ify I am so sorry and I completely understand what you're saying. I think the biggest frustration is that we are suffering so horribly and nobody knows (around us) and nobody seems to care. Everybody just carries on with their lives and here we are stuck and trapped as prisoners of fatigue and our own bodies. Most patients were very active before getting sick as was I, and then gradually I got worse until I physically could not get out of bed, ferocious headaches. Your life is stolen.