Treacher Collins Syndrome
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Hello i have TCS but lots of people stare at you, but i lived through a life were most people liked me for who i am, and ya it is embaressing but idk people are just so nice to me they probably just feel bad and im getting surgery to get everything fixed so im pretty happy :) but when girls look at me and say eww and shit i just wana die... But some girls are really nice.
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@alsnbrt Omg Im glad. and so happy for you. <33 I wish her peace throughout her whole life <33
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Yes thankfully, she was born on October 24th, 2010, and had no visable symptoms of Treacher Collins Syndrome, we had genetic testing done for her and she is free of the affected gene! We are all very happy, and she couldn't be a sweeter little girl :) Thank you for asking
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@alsnbrt is everything alright with this baby?
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im glad somebody put an explanatory video on tcs. thank you. people are super ignorant and i wish that i could show the whole word this
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i hope i dont have nitemares.
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@Megannerein I also can't have a child unless i take the testing. but if the test proves that the child will have TCS then the doctors will abort the child. I believe that an embro is still a human child that has feelings. And I just don't have the heart to do abortion. I believe abortion is a murder but thats my point of view. Sorry if I offended anyone.
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Hi I'm 18 yrs old and I have Treacher Collins Syndrome. I inherited it from my birth mother. I just want to let you know that you can die from this disease. I'm actually lucky to be alive. I don't know the medical terms but I was born 3 weeks early, because the doctors didn't think I would make it. they had to do emergency surgry on me. I had a feeding tube, a trach, and some other stuff. Every one is pretty shocked that im still around.
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i am pregnant and the father has treacher collins syndrome, the 12 week ultrasound looked ok, we are getting further testing done and we are hoping for the best
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Hi,I deal with my TCS for 52 years. Everyday is new. Do not hold back these people let them grow to what they want to do!
Itnor what other people think about you[mean things] that is there problem, Live your own life and enjoy it!
Sorry for my spelling its the best I can do.
LOve you all, :)
tbertolacini 3 years ago 10
wonderful way to raise awareness-I have never heard of this disease it's quite sad-very informative video
Niar73 3 years ago 8