PKU and us

U know what Michelle, I can't pronounce it either and I have it. Classic Heh but can spell it! You child's sooo cute! Innocent!. Amazing description/information. Good video!!

this was a random video i desided to watch...very informative..

Great Video! I have a soon to be 5 year old with CPKU. Could not explained it this well to anyone! I have forwarded this video all my family and friends to help them "get it".

WOW!!! I gotta say this is very very funny! I loved it! Not many people take the time to go out and make a video clip like this!! I've tried that diet goin on 20 years now! your right the food is very very VERY expensive! Your food list book looks very new compared to mine! haha no worries you learn to deal with it. it just becomes a routine. I still get them stupid questions daily. People think they got it rough?? HA!try living with PKU for 20 years! it gets way easier with time.

WOW!! Thanks for this Wonderful Video of yours.. I am a nursing student too! and i like to say that millions of nursing student was inspired by this video. =) thanks...!!! GOD BLESS US!

I am in nursing school and we are learning about PKU right now. I must say, your video was very helpful!!! I got all of my diet questions correct. Thanks for your help.

starting to watch the video, I was not sure if I wanted to watch it all the way. Now I must say you´ve spoken out of my soul. My daugther has PKU and we are on a 5g diat and we expierience the very same kind of people woundering about our dauther´s protine disorder. She is 10 year old and we found ways not even to mention her eating limitations. Keep up your creative work and your support to your daughter.
Best regards from Switzerland

THANK YOUUU.
my brother has pku so i know about it!!
im presenting something next week, because i want my biology class and biology teacher to know what it is. IM SICK &TIRED OF PEOPLE ASKING THE SAME QUESTIONS!!!!!!
"can he have chocolate? Can he eat beans?"
AHHHHH!! youre video is funny.
hope catie has good success in keeping up with the diet. peace.!<3

She actually won an award for this video - from a Rare Disease organization.
She already explained that she realized she was pronouncing it wrong. Read the info box in the right hand corner. Give the woman a break. Guess what? even though she doesn't HAVE PKU she is still living with it - in her daughter - as I am with my son.

i have this