Faces of Lupus

The Alliance for Lupus Research presents the Faces of Lupus. A series of 6 stories told by people directly affected by this debilitating disease.
Starring: Michael Douglas, ALR Founder and Chairman Robert Wood Johnson IV, ALR Scientific Advisory Board Chair Joseph E. Craft, MD, and ALR volunteers Eddie and Kyle Beltran, Tracey Boston, Gena Carter, MD, Annie Corley-Hand, Laura, Erika, and Tyler Poquette, and Dorian Mims.

Category:

Nonprofits & Activism

Tags:

• lupus
• Michael
• Douglas
• debilitatind
• disease
• side
• effects
• nonprofit
• public
• service
• announcements
• grassroots
• outreach

[TheRaGiTe]

Michael Jackson had Lupus and Vitiligo. The shit people put him through for suffering from real and potentially emotionally and physically debilitating diseases. This is reflective of our attitudes in general. People need to see other people as humans. We are all humans. We all have disabilities, some more obvious than others. It's time we stop judging and abusing people and find out who they really are inside. No one wants to be alone.

[crywolfman]

Hi.

I am the first recorded male in medical history to have Lupus. I was in San Fransico University Hospital 1964-1965. I am now turning to be 52. I am healthy, have my scars from exploritory surgery and skin graghs that were sent to Boston for research. Had the Butterflies on the face. Had to relearn to walk again. Just want to wish you all the best and let you know that miracles do happen.

M

[PetsNPatients]

As a lupus patient since 2000 and having overcome a life threatening case, means loving it and understanding it. My dog died from lupus in 2006 after I recovered..My sister now afflicted. love and love more...rest and rest more.

[myalr]

it is unclear. genetics could play a role. you cannot 'catch' lupus like a cold though.

[ADDUSTACKERS]

@crywolfman A KID IN OUR SCHOOL ALSO SUFFERS LUPUS I THINK HE IS 10 OR 11 YEARS OLD . I HOPE THEY WILL FIND A CURE NOW ,SO THAT BOY WILL LIVE IN PARADISE. HIS CLASSMATES TOLD ME THAT HE HAS CELLS THAT EATS HIS OTHERS CELLS.AND I HOPE YOU WILL BE CURED.

[gumlover2]

it does not always show in the blood but u can still have it it can lie doormeant for years.

[M2Snipes]

My mom has lupus :(

[TOOLGODDESSTT]

it is very unlikely if your ana was negative.

[HaloNerd121]

i have it i get out of breath just trying to lay down in bed

[bandie2themaximum]

sorry i just found this or i would have replied sooner. there are people out there with worse cases then i do, but i find it hard to deal with. i've been hospitalized multiple times, and i'm just always tired. do you have it?

[Mojosfire]

Oh, also have high blood pressure, could that also be connected? Both my babies I had to have early as well, due to severe Preaclampsia while pregnant.

[Mojosfire]

I'm trying to find out if Lupus is what I am suffering from. I just now finally got insurance. However, my last blood test was negative, but I was told that can happen. I get the pain all the time in my bones and muscles. I get the mouth ulcers, nausia, tiredness, and I have a mild red area across my cheeks and nose. The doctor even noticed that, but yet the blood test was negative. Lupus also runs in my family. My cousin and my Aunt both had it, they have both passed away. My cousin was 26.