Heather's Chiari Story of Hope

Hear Heather and her husband Ron share their experience from struggling to find a diagnosis to one year after surgery. In this account all the hospital footage from the surgery day is the real thing. You will see and hear the emotions from their journey and even get to see the followup interview from 1 year after the surgery(filmed on the exact anniversary date).

Category:

Education

Tags:

• chiari malformation
• kiari
• Dr. Scott Gibbs
• Dr. Gibbs
• Cape Girardeau
• headaches
• hope heather

[missamelie17]

@blueydblondie06 Hi! i also have sm (had surgery with a spinal cord tumor), laminectomy, shunt, etc....i live with horrid pain 24/7 also. blessings your way

[Wendy6082]

Thank you for sharing your story it is a comfort to know that the surgery has given you relief. I am due to have surgery on the 19th of Aug. this year for my Chiar Malformation. Your video has given some peace as to what to expect . Thank you again and God bless!!! Wendy

[lestat34208]

@123boardman get a mri done asap! then find a neruosurgeon...

[mystorieman]

Thank you for sharing your story. My Mother was just diagnosed and although it seems scary, it is a blessing to finally know what is wrong. Watching your story has shed some light on the subject for the two of us. Thank you!!!!!

[blueydblondie06]

@blueydblondie06 I was just wondering if anyone else has had so many complications after their surgeries as well? Its to the point where I get botox, epidurals, cervical facet injections and am on constant medication and I don't get any relief.. I need help!

[blueydblondie06]

Hello, I'm a 23 y/o nursing student.My decompression was June 2006. After 14 surgeries My dx is "severe chronic head pain". I have a great pain doctor but my life still isn't normal. Constant throbbing headache, blurred/ 2x vision w/ sudden stabbing pain are my worst symptoms. It is extremely hard and most days it takes everything to get out of bed. I use to think I was the only one experiencing this. I'm glad there are others to talk to, but I wish I could take everyones pain.. Hang in there!!

[fairytalefaries]

Hi I'm 13 and I actually had this surgery done in Sep. And this is exactly what I was wondering because it's been 4 months since my surgery and I've been getting constant headaches although there not as bad as they were b4 but I was just wondering if they would stop soon

[kristenbyas]

@jackhamma3

I had neurodecompression surgery a few months ago to correct Chiari. I have had a few headaches since the surgery, but they are not like the headaches before the surgery. I also feel tightness in the front of my head.

[jackhamma3]

My daughter, who is 13, had this decompression surgery done on Dec. 11, 2009. May I ask if you still had headaches after your surgery? If so, for how long? She is having headaches, although she says they are different from the initial pains before surgery. We do have an appointment for a post-op visit. Would just like more feedback from other Chiari patients.