Mobius Syndrome

This video is about Mobius Syndrome and me having it.

If you have any question or if you have Mobius yourself, feel free to contakt me. I would really appreciate it!

Hope to hear from you!

Category:

People & Blogs

Tags:

• Rare
• Sweden
• Mobius
• Moebius
• Mobius Syndrome
• Caroline
• Girl
• Surgery
• Smile Surgery
• Mouth
• Here
• Avareness
• Svart Vit
• Black
• White
• Black and White
• Svart
• Vit

[laurendd1123]

:D SWEDISH woo. you have a cute accent :3 I had that surgery when I was 5... annnddddd you speak really well for having the syndrome. YES I have the syndrome. and yesh it is soo annoying. but whatever. soo...yeah.

[Linen15]

@laurendd1123 Haha, do you like Sweden? :P Haha, thank you ^^ But I spoke very weird on this vid. because I was sooo nervous :P I think (and hope :P) I sound a bit better now :P Oh, you do? When you were five? Wow, do you remember anything from it? Haha ^^

[LizDMurf]

Hello - thanks so much for this. My darling 5 year old daughter has moebius syndrome, so as soon as she is old enough, we will get you two in contact so you can talk about your experiences. We live in Australia and are lucky to live in the city that is home to the Caniofacial Unit - we are also looking at what surgeries are available, so I'm keen to know how effective your surgery has been (if you've had the smile surgery yet). Thanks again for this. Also, how did you cope socially at school?

[Linen15]

@LizDMurf Hi :) This monday coming up, will be one year since my surgery and I've had a lot of changes. I can smile but I am still working on learning it. Allthough my life has improved sooo much since the surgery, just being able to move my cheeks makes it all so much worth it. Just one thing though, let your daughter be old enough to make any dessisions about surgerys herself. Because my parents let me decide it all by myself and I think that is for the best. I coped very well at school :)

[TwiggyletteRamirez]

Hey, My name is Kelly, I also have Mobius..I am 37 yr old female in Mich. I have lived my life and currently still do(haha..obviously)..this doesnt stop me. Hope you all can do what you want to also.. I am here for help and support. Text me 586-698-8250. Always here to make friends..

[Linen15]

@TwiggyletteRamirez Hi :) No, I don't let it stop me either :) I am a really happy person and won't let such a small thing as mobius stop me ^^ Oh, We don't live in the same country so texting would be very expensive, sorry :P

[LizDMurf]

@nosrednayrrek Yes, I'm interested as well. I've been looking at some of his facial feedback work which suggests that the muscles on the face fire emotions, rather than the other way around. Would be an interesting research project to amass data on this and test that idea empirically.

[Linen15]

@casualjc Hi, thanks. :) My number? Do we even live in the same country? :P

[casualjc]

I think you are wonderful. Hi, I'm James, I was born with Mobius, yes it's annoying, but it doesn't stop us being ourselves. Live your life! Can I have your number?

[Murtherion]

I like your video, you are very intelligent. I appriciate your courage!

I'm from Uruguay and I talk with someone with the same syndrome u tell us