M.E. / Chronic Fatigue Syndrome - Sleepydust Video

The video aims to help the friends and family of ME/CFS (including Myalgic Encephalomyelitis (M.E.), Chronic Fatigue Syndrome (CFS), and Post Viral Fatigue Syndrome) sufferers understand the illness and what their loved ones are going through. To view a clearer, larger version of the video, visit: http://www.sleepydust.net/me-cfs-chronic-fatigue-syndrome-video.html

Category:

People & Blogs

Tags:

• chronic
• fatigue
• syndrome
• m.e.
• cfs
• post
• viral
• illness
• cfids
• fibromyalgia
• fms

[DrFrankyDolan]

We are all working so hard to raise awareness about these Invisible Diseases! Please, my friends, do not give up! I will not stop fighting for every one of you. ..For us.

I always say; though my body is weak, my spirit is not!

We are in this together.

Sending Love...

[redchilidoll]

I am 25 years old and have had ME for 1.5 years now. I have been in denial for much of it. Please visit this website which I have just found recently. It has a great deal of useful info.

I'm glad to find there are other people out there who understand. I'm tired of feeling like people don't give me the "right" to be sick, just because I don't have cancer or "look" sick.

As if it isn't hard enough. It is very alienating and I hope and pray for you all.

[MyMaxKali]

I pretty much cried through this entire vid. I think i'm in mourning over the things I can't do. I want so badly for the people around me to understand. I can't even find a doctor that knows anything here in Florida.

[TheCharlieeLouisee]

Hello, i'm Charlie, i'm 15 and my mum is a sufferer from M.E.

it's not nice to see someone special to you, be in pain, 24/7 and also knowing there is nothing you can do to make her better. My mum has had M.E for 5/6 years now, and she things havent got any easier. Also her friends don't hardly see her.. she feels alone, because i can't always be there for her. Her friends don't understand what she is going through, and honestly...i didnt quite understand either...til i watched this video.

[DeltaElite121]

I would give everything I have, all my possessions and everything just to feel okay again. I'm 24 years old and people really don't see how hard it makes even a simple task like studying for school or even hanging up clothes. Everyone says "you look fine" but the only way I can describe it is feeling like you're going to pass out after staying up for 3 days, but you can't actually sleep. You're too tired to sleep. Too tired to eat, and even if you do eat/work out it doesn't feel any better.

[Sophieepie]

i was diagnosed with M.E last year and i lost all my friends due to my illness im 15 i now have part time schooling and home tuition although the docs think i will have it for the rest of my life this vid touched my heart thankyou ever so much for making it

[paulakaye5]

The ONE thing that can be said is - this is NOT a "New Disease"!! It has gone by several different names in different times in history! Such as "Pernicious Anemia", and a variety of others! I remember my Mother speaking about my Grandmother - how she "took to her bed because she 'couldn't do anything anymore'"!

My Mother had the SAME EXACT symptoms after the age of 45 or so! And, guess what? I never put it together before this video! I"m showing symptoms too!

[MsKrusie]

I've had cfs for the past 15 years, I'm now 50. I was a young energetic mother of three children doing triathlons when I contracted CMV. Watching this video, like others, touched my heart. It also made me realise that I'm not alone. Thank you.

[rosybunny100]

I sat and cried watching this as it describes this horrific illness and its many sypmtoms and how it makes us feel so accurately. I have been ill with ME for 4 years, I am 37. I am mostly housebound and bedbound. I had to fight for my ill health retirement and my state benefits when I was at my lowest ebb and had no strength to fight. I dont feel anyone who hasnt got this illness trully understands my suffering. Thank you so so much for making this video, I will post it on my facebook page.

[Denomar]

I'm 20 now. What I wouldn't give to go back in time and warn my 17 year old self to make the most of things.

[zodiacmk11]

I was diagnosed with both ME/CFS and Fibromyalgia just over a year ago. Watching your video has heloed by me not feeling so alone with this illness. My Doctor gives me 21 pills a day to help control the pain, but offers no sign of a cure. I was a recovery driver for the AA. Now I have difficulty just brushing my teath. Lets work together to push for a cure, It's not in the mind, It's in the body. Thanks again .