Lady with trimethylaminuria (TMAU) halitosis breath problem on TV show

Karen appears on a UK TV chat show to talk about her halitosis caused by trimethylaminuria (TMAU). In her case it can cause a rotten egg smell. It is nothing to do with hygeine and can cause body odor too. Karen has the 'aquired' type (TMAU2) and has had the problem for 10 years. She mentions http://www.meboresearch.org
and their petition http://www.meboresearch.org/petition.html
other links:
MeBO Research blog
http://www.bloodbornebodyodorandhalitosis.com/

TMAU 'strict' overview : http://www.ncbi.nlm.nih.gov/books/NBK1103/

Forums :
http://www.tmau.org.uk/
http://breathandbodyodour.proboards.com/

Category:

Education

Tags:

• halitosis
• body odor
• smell
• odor
• trimethylaminuria
• TMAU
• fish odor syndrome
• bad breath

[kuumbaful]

thank goodness for another brave sufferer coming forward to share her story.

i to am a tmau sufferer also. this condition is extremely debilitating on every person who suffers from these type of genetic disorders.

i'm so grateful that she came forward with her story.....

she's definitely a soldier in arms...

god bless

[greenbenjimin337]

I also suffer from this disorder and it is bad experience living with this. It is socially debilitating. I hope that more of us will come out so that awareness will grow and more funding can be brought in to these organizations that deal with TMA.

[tomcat624u]

DOES ACTIVATED CHARCOAL HELP WITH THIS HEALTH PROBLEM?

[tmrparker]

This disease has also ruled and ruined my life. College was just awful! Everyone talked about me. And I quickly became that "girl that smells or stinks." some even went as far as taking pics of me and posting on the Internet and now everywhere I go people are always pointing at me and making the most horrible comments. Numerous times I thought about commenting suicide but after watching this story and others, I now have a new hope.

[StaticTricity]

@salimalgeria1 have you tried the diet change? or charcoal?

[BENEHARA]

I´m from Spain I speak a little bit of english...this video is one of my best friends here in youtube ¡¡ Thanks a lot for sharing with us ¡ XOxo

[chickwithaface101]

I think I have this. In high school, I overheard this one girl yelling at other people that I smell. I started taking 2 showers a day and washing myself twice each time. In college, EVERYBODY I sat next to always moved their seats far away from me. Then at work I heard customers say it smells. I don''t know what to do! My friends say they can't smell anything. It's a living hell.

[tomcat624u]

its about time this disease was studied and cured!!!!!!! WE CAN PUT A MAN ON THE MOON, BUT CAN'T CURED THIS DISEASE? SOMETHING IS VERY WRONG WITH OUR CURRENT MEDICAL PRACTICES!!!!!!!! SHAME!

[namian04]

she is very well-spokenn

[salimalgeria1]

sewage.fishy.fecal odours..i cant bear this life any more

[SHYx999]

Groundbreaking expose' , So often now we are seeing 'laypersons' who know much more about a subject than Dr's . This is No exception . The Dr did bring her Celebrity to the issue while Karen bring the knowledge and a push for more. Thanks for this great interview.