7 days Of Near Normality!

I have had seven days when I have been really well. Is it a change of medication? I found this bit of info which I have applied and it seems to have worked for me:
http://www.dfwcfids.org/medical/klonopin.html

Category:

People & Blogs

Tags:

• me/cfs
• neurological
• condition
• cfs
• undiagnosed
• myoclonus
• involuntary
• movements

[kaazoom]

Good to hear you are getting some symptom relief! The clonazepam is still helping me to sleep, but it just hasn't continued to keep me so mobile.

[neelubird]

This is great news. The difference it has made is very noticeable as your speech was more clear and uninterrupted in this vid. I can relate to the similarities to seizures. I'm a bit sound and light sensitive myself.

[kaazoom]

Unfortunately it on lasted 12 days. On Sunday my legs went again and my involuntary movements reapeared. They started to come back over the course of about 5 hours. Monday morning walking again fine, but deteriorated again during day. Tuesday all symptoms reappeared! It looks as if I only had a remissiom! It was nice while it last though.

[twopointsix]

Hi Paul, it's so fantastic that the Clonazepam has helped you so greatly! I'm on the stuff too since October last year thanks to Dr. Cheney, and it has immensely reduced my light, noise, touch sensitivity, ironed out my sleep to a mostly unbroken 10 hours (at NIGHT!), and generally just made my daily life so much more bareable. Really is brilliant for me also (and I also took up a little gardening with the extra functioning it gave me!)

Hope it keeps up :-)

[kaazoom]

I am really glad that they worked for you too! I am still very cautious about with ti is the clonazepam or a remission. It is day 8 and I am still fine! A few involuntary movements but nothing significant. Glad you were able to do some gardening too! It's so good to be able to do normal things.

[wwwFamilyPrideOrg]

Clonazeapam Benzos as a last resort ONLY it more addictive than Heroin

They work great initially

Your getting a Chemical Frontal Lobotomy

that part of brain controls organising directing.

[kaazoom]

I agree that it is a last resort. But if you read what Dr Cheney says about using them, they are only a problem if they are not used correctly for the right thing. He says that when used in ME/CFS patients it helps to stop more damage being done to the neurons. Take a look at the link I posted along with this video.

[deadgirldreaming]

Hi Paul,

Sorry the remission period didn't last.

I've recently started taking Gabapentin (Neurontin) along with the Diazepam and I am finding that helpful.

Gabapentin helps with seizure stuff (is given for epilepsy) and with neuropathic pain.

Also GP said it is vasoconstrictor and so probably helps with orthostatic intolerance symptoms.

It is only masking things but I can sit upright for a ittle longer.

[neelubird]

It's good that you made the most of the time while it lasted. I'm sorry it was so short lived though. It sounds as though clonazepam works, but only temporarily. A friend recommended that I take castor oil for C-based IBS but told me to only take it once a week or else it loses its effects if I take it all the time. I wonder if a similar principle applies to clonazapam or other drugs which only seem to work temporarily?

[simonwesselysfanclub]

"when people complain that my treatments are placebo I remark, well I am learning a great deal about the neuropharmacology of placebo" Jay Goldstein